RESUMO

Resumo: Esta pesquisa, apresentada no formato de artigo, está inserida na linha de pesquisa Processo de Cuidar em Saúde e Enfermagem, do Programa de Pós-Graduação em Enfermagem, e integra o Grupo de Pesquisa Multiprofissional em Saúde do Adulto da Universidade Federal do Paraná. Introdução: o câncer nasal e dos seios paranasais corresponde a menos de 1% dos demais tipos de câncer, com fatores etiológicos decorrentes do meio ambiente, das atividades ocupacionais e dos hábitos de vida, com período de latência que pode variar até 20 anos para o aparecimento dos sintomas neoplásicos. Objetivos: caracterizar o perfil sociodemográfico, clínico e ocupacional dos brasileiros com câncer nasossinusal; traduzir, adaptar culturalmente e validar o Questionario Sulla Storia di Lavoro e Sulle Abitudini di Vita utilizado pelo Registro Tumori Seni Nasali e Paranasali da Lombardia, Itália, para o contexto cultural brasileiro; examinar o perfil sociodemográfico, clínico e ocupacional dos pacientes com câncer nasossinusal e relacionar a ocupação com a exposição ao pó de couro, lenha, cromo e níquel. Artigo 1: é um estudo observacional, descritivo e retrospectivo, utilizando os dados secundários do Integrador de Registro Hospitalar de Câncer no período de 2007 a 2019, com os CIDs: C30.0 e C31.0 a C31.9. Foram analisados 1.803 registros e destacou-se que 1.161 (64%) eram do sexo masculino, com faixa etária predominante entre 50 e 59 anos (26%; n=298), da raça/cor branca (46%; n=535), solteiros (55%; n=640) e com ensino fundamental incompleto (40%; n=461), que tinham incidência da neoplasia no seio maxilar (52%; n=943), com estadiamento clínico grau IV (32%; n=575). A ocupação foi registrada nos brasileiros com câncer nasossinusal no Grupo 6 (64,7%; n=701) - trabalhadores agropecuários, florestais e da pesca, e no Grupo 8 (26,7%; n=289) - trabalhadores da produção de bens e serviços industriais, principalmente no Estado da Bahia (11%; n=206) e Minas Gerais (18%; n=327). Artigo 2: descreve um estudo metodológico com as etapas de tradução, síntese, retrotradução, relatório de retrotradução, revisão, teste piloto e tradução final proposto pelo European Organisation for Research and Treatment of Cancer. O instrumento foi dividido em 11 domínios conforme a característica das perguntas do instrumento original. O pré-teste foi realizado num hospital de referência em oncologia do Estado do Paraná, Brasil, com 15 participantes que foram os pacientes com câncer nasal e dos seios paranasais e cinco familiares, entre julho e setembro de 2021. O instrumento obteve um índice de 94% de concordância entre os juízes, que fizeram sugestões de inclusão, manutenção semântica e substituição em 11 domínios. No pré-teste os participantes fizeram confirmação do entendimento sobre as perguntas e os domínios de 100% (n=15), entretanto, todos tiveram dificuldade de interpretação da palavra "popper", e 53% (n= 8) fizeram proposições de melhoria no questionário. Um participante solicitou a inclusão do narguilé nos hábitos de fumo. Artigo 3: consiste num relato de séries de casos de um hospital de oncologia do Estado do Paraná, no Sul do Brasil, no período de 2005 a 2021. Foram incluídos pacientes com idade acima de 18 anos, de ambos os sexos, com CID C30 e o grupo C31, que estavam em acompanhamento de saúde nos últimos 12 meses na instituição hospitalar, ou familiares (no caso de óbito do paciente) com idade superior ou igual a 18 anos. Os participantes foram entrevistados com o Questionário sobre o Histórico de Trabalho e os Hábitos de Vida, com os dados obtidos analisados por frequência simples e absoluta Resultados: O Artigo 3 teve 52 participantes eram do sexo masculino (56%; n= 29), casados (31%; n= 16), com ensino fundamental completo (23%; n= 12) e sem histórico de tabagismo (27%; n= 14), onde a localização prevalente foi C30.0 em homens (33%; n=17) com carcinoma de células escamosas (40,3%; n= 21). A exposição carcinogênica com poeira da madeira (29,8%; n=17), cromo e níquel (17,5%; n=10) e com couro e derivados (14%; n=8). Conclusão: a frequência do câncer nasal e dos seios paranasais foi maior no sexo masculino, com ensino fundamental, nos trabalhadores agropecuários e da indústria de transformação e tiveram exposição ao agente carcinogênico; o estudo poderá motivar as reflexões acerca do acometimento do câncer nasal e dos seios paranasais no contexto brasileiro, principalmente de origem ocupacional, conforme as monografias do International Agency for Research on Cancer, que enfatiza a importância de utilizar um instrumento de investigação com informações complexas e essenciais do histórico ocupacional e dos hábitos de vida direcionado para o câncer nasal e dos seios paranasais.

Abstract: This study, presented in the form of an article, is part of the Care Process in Health and Nursing research line of the Postgraduate Program in Nursing, and the Multiprofessional Research Group in Adult Health at the Universidade Federal do Paraná. Introduction: nasal and paranasal sinus cancer corresponds to less than 1% of other types of cancer, has etiological factors resulting from the environment, occupational activities and lifestyle, and a latency period varying up to 20 years for the onset of neoplastic symptoms. Objectives: to characterize the sociodemographic, clinical and occupational profile of Brazilians with sinonasal cancer; translate, culturally adapt and validate the Questionario Sulla Storia di Lavoro e Sulle Abitudini di Vita used by the Registro Tumori Seni Nasali e Paranasali from Lombardy, Italy, for the Brazilian cultural context; to examine the sociodemographic, clinical and occupational profile of patients with sinonasal cancer, and relate the occupation to exposure to leather dust,wood dust, chromium and nickel. Article 1: is an observational, descriptive, retrospective study using secondary data from the Hospital Cancer Registry Integrator from 2007 to 2019 with ICDs: C30.0 and C31.0 to C31.9. Analysis of 1,803 records was performed, highlighting that 1,161 (64%) were male, predominant age group of 50-59 years (26%; n=298), white race/color (46%; n=535) , single (55%; n=640), incomplete primary education (40%; n=461), with incidence of neoplasia in the maxillary sinus (52%; n=943), and clinical staging grade IV (32%; n=575). The occupations registered in Brazilians with sinonasal cancer were in Group 6 (64.7%; n=701) - agricultural, forestry and fishing workers, and in Group 8 (26.7%; n=289) - workers in the production of industrial goods and services, mainly in the states of Bahia (11%; n=206) and Minas Gerais (18%; n=327). Article 2: describes a methodological study with the steps of translation, synthesis, back-translation, back-translation report, review, pilot test and final translation proposed by the European Organization for Research and Treatment of Cancer. The instrument was divided into 11 domains according to characteristics of the questions in the original instrument. The pre-test was carried out between July and September 2021 in a reference hospital in oncology in the state of Paraná, Brazil, with 15 participants that were patients with nasal and paranasal sinus cancer, and five family members. The instrument obtained an index of 94% agreement among judges, who made suggestions for inclusion, semantic maintenance and replacement in 11 domains. In the pre-test, although participants confirmed their 100% (n=15) understanding of questions and domains, all had difficulty interpreting the word "popper", and 53% (n=8) made suggestions for improvements in the questionnaire. One participant requested the inclusion of hookah in smoking habits. Article 3: consists of a case series report from an oncology hospital in the state of Paraná, southern Brazil, from 2005 to 2021. Patients of both sexes aged over 18 years, with ICD C30 and group C31, under healthcare in the last 12 months at the hospital, or family members (in the case of patient's death) aged 18 years or older were included. Participants were interviewed using the Work History and Lifestyle Questionnaire. The data obtained were analyzed by simple and absolute frequency. Results: Article 3 had 52 participants that were male (56%; n= 29), married (31%; n= 16), with complete primary education (23%; n= 12) and no history of smoking (27 %; n=14), and the prevalent location was C30.0 in men (33%; n=17) with squamous cell carcinoma (40.3%; n=21). Carcinogenic exposure to wood dust (29.8%; n=17), chromium and nickel (17.5%; n=10), and leather and leather products (14%; n=8). Conclusion: the frequency of nasal and paranasal sinus cancer was higher in males with primary education, in agricultural workers and in the manufacturing industry who were exposed to the carcinogenic agent; the study may motivate reflections on the involvement of nasal and paranasal sinus cancer in the Brazilian context, mainly of occupational origin, according to monographs of the International Agency for Research on Cancer, which emphasizes the importance of using a research instrument with complex and essential information of occupational history and lifestyle habits directed to nasal and paranasal sinus cancer.

Assuntos

RESUMO

Atopic dermatitis is a common chronic dermatological disease in childhood that can affect people's quality of life. The aim of this study was to inquire about the difficulties, needs and interests related to the disease that people with eczema and their caregivers have; in order to develop a tool that is useful for the follow-up of the illness. Electronic surveys were sent to potential users and interviews were conducted with professionals who are specialized on the subject. The main findings allowed us to understand the challenges and situations they face on a daily basis, such as the difficulties related to the family support, the queries on the eczema flare-ups, the struggles with the adherence to treatment and the needs of optimizing their quality of life. These results helped us design a tool that allows patients and their companions to better monitor their disease while optimizing communication with their health professionals.

Assuntos

RESUMO

This study presents an online psoriasis community developed with dermatologists in a PHR. We describe the interaction of users with this platform and the relationship between the use of self-report questionnaires, their results and users' subsequent contact with the healthcare system. Out of 2175 users that interacted with the platform, 477 visited the forums. 60% of those who completed questionnaires presented at least one abnormal result that prompted a recommendation for an outpatient visit. Although our data suggest a trend, we failed to find a statistically significant association between questionnaire severity and visits scheduling. To our knowledge, this is the first study that analyses the relationship between patient self-reported disease severity and the subsequent contact with the healthcare system.

Assuntos

RESUMO

The digital divide can hinder the ability of elderly patients to fully benefit from PHRs. They are "digital immigrants", not having the life-long exposure to technology as younger generations, as well as physical and cognitive disabilities. The aim of this study was to explore the digital divide as a barrier for the use of a PHR in older adults (> 69 years of age) and describe the use of a PHR in an elderly population in Argentina. We conducted a cross sectional study which included older adults who attended the Coronavirus vaccination campaign in 2021. Data were collected through a survey encompassing digital divide factors and use of the PHR. A total of 128 participants agreed to complete the survey, 60.15% reported using the PHR. We found a statistically significant correlation of education level, having a personal computer and internet access with PHR use. Concerning PHR users, 45.45% reported needing assistance to use it. Although the elderly population represents a large portion of patients, there is not enough research done on their use experience using eHealth solutions. There is pending work in the eHealth field to integrate these elders into current PHRs and help them enjoy their benefits.

Assuntos

RESUMO

The objective of this study was to investigate the difficulties and information needs that both patients and their companions have in the context of a scheduled surgery. Observations in the operating room waiting zone and semi-structured interviews were conducted to patients with scheduled surgeries, their companions, administrative staff members and surgeons. We developed a journey map to explain the patient's experience through the perioperative process. The emerging categories were Fragmented communication, Understanding the surgical process and Waiting times. Knowing the information needs of patients and companions was important to identify problems and opportunities for improvement in our institution's Personal Health Records.

Assuntos

RESUMO

Objetivo: Identificar o conhecimento dos pais acerca da Caderneta de Saúde da Criança, mapear o preenchimento da Caderneta pelos profissionais e correlacionar o preenchimento da caderneta com a orientação dos pais pelos profissionais de saúde. Métodos: pesquisa quantitativa descritiva, realizada num hospital universitário, através da aplicação de formulário com 22 pais ou responsáveis e análise através de tabelas, gráficos, estatística descritiva e inferencial. Resultados: (77,3%) dos entrevistados alegaram não ter recebido orientação sobre a Caderneta, a maioria das cadernetas não apresentava registro no item de Índice de Massa Corporal tanto como a maioria apresentava preenchimento completo no item de registro de vacinas do calendário básico e as correlações não foram significativas, apresentando independência na maioria. Conclusão: evidenciou-se uma necessidade de orientação dos familiares tanto como capacitação dos profissionais que trabalham com a população infantil e não se verificou dependência entre a maioria das variáveis correlacionadas neste estudo

Objective:To identify parents' knowledge about the Child Health Handbook, map the completion of the booklet by professionals and correlate the completion of the booklet with the guidance of parents by health professionals. Methods: descriptive quantitative research, conducted in a university hospital, through the application of a form with 22 parents or guardians and analysis through tables, graphs, descriptive and inferential statistics. Results: (77.3%) of respondents claimed not to receive guidance on the Passbook, the majority of the handbooks had no record in the Body Mass Index item as much as most completed in the basic calendar vaccine record item and correlations were not significant, presenting independence in the majority. Conclusion: there was a need for guidance from family members as well as training of professionals working with the child population and there was no dependence between most of the correlated variables in this study

Objetivo: Identificar el conocimiento de los padres sobre el Manual de Salud Infantil, mapear la finalización del folleto por profesionales y correlacionar la finalización del folleto con la orientación de los padres por parte de profesionales de la salud. Métodos: investigación cuantitativa descriptiva, realizada en un hospital universitario, mediante la aplicación de un formulario con 22 padres o tutores y análisis a través de tablas, gráficos, estadísticas descriptivas e inferenciales. Resultados: El (77.3%) de los encuestados afirmaron no haber recibido orientación sobre el Manual, la mayoría de los manuales no tenían registros en el ítem del Índice de Masa Corporal tanto como la mayoría había completado en el ítem y las correlaciones del registro básico de la vacuna del calendario no fueron significativas, presentando independencia en la mayoría. Conclusión: era necesaria la orientación de los miembros de la familia, así como la capacitación de profesionales que trabajan con la población infantil y no hubo dependencia entre la mayoría de las variables correlacionadas en este estudio

Assuntos

RESUMO

RESUMO Objetivo: Implantar e avaliar um programa de melhoria dos registros em prontuários do um hospital do município de Farias Brito, estado do Ceará, Brasil. Material e Método: Trata-se de um estudo com abordagem quantitativa, quase experimental do tipo antes e depois de avaliação de critérios de qualidade. A pesquisa foi realizada entre janeiro de 2017 e julho de 2018. Foram avaliados 87 registros em prontuários selecionados de forma aleatória, realizados pela equipe multiprofissional totalizando 35 profissionais. Foi realizado em seis etapas: 1) Identificação e priorização de um problema de qualidade, 2) Análise das causas do problema, 3) Desenvolvimento de critérios para avaliar o nível de qualidade, 4) Avaliação do nível de qualidade, 5) Intervenção de melhoria dirigida aos critérios mais problemáticos e 6) Reavaliação do nível de qualidade. Para avaliar a qualidade, antes e depois da intervenção, foi realizado cálculo da estimativa pontual e do intervalo de confiança (IC= 95%) do nível de cumprimento de oito critérios. Para avaliar o efeito da intervenção, foi estimada melhoria absoluta e relativa de cada teste de hipótese unilateral por meio do cálculo do valor de Z. No ciclo de melhoria, os dados foram analisados pelo Gráfico de Pareto. Resultados: Na medição inicial, foram obtidos índices de cumprimento de 36,30% em média, enquanto na segunda medição, notou-se um aumento na média de cumprimentos de todos os critérios em 19,45%. Conclusão: Percebe-se que o ciclo de melhoria é uma ferramenta efetiva para fortalecer a qualidade dos serviços desenvolvidos especialmente a qualidade dos registros em prontuários do hospital.

ABSTRACT Objective: To implement and evaluate a program to improve medical records in a hospital located in the municipality of Farias Brito, Ceará State, Brazil. Material and Method: Quasi-experimental study of the type before and after the evaluation of quality criteria, with a quantitative approach. The survey was conducted between January 2017 and July 2018. 87 records were evaluated in randomly selected medical records that had been performed by the multi-professional team consisting of 35 professionals. The research was carried out in six steps: 1) Identification and prioritization of a quality problem, 2) Analysis of the causes of the problem, 3) Development of criteria to evaluate the quality level, 4) Evaluation of the quality level, 5) Improvement intervention aimed at the most problematic criteria, and 6) Re-evaluation of the quality level. To assess quality before and after the intervention, point estimation and confidence interval (CI= 95%) of the level of compliance to eight criteria was calculated. To evaluate the effect of the intervention, absolute and relative improvement of each one-sided hypothesis test was estimated by calculating the Z-score. In the improvement cycle, data were analyzed using Pareto chart. Results: In the first measurement, compliance rates of 36.30% on average were obtained, while in the second measurement there was an increase in the average level of compliance of all criteria by 19.45%. Conclusion: It is clear that the improvement cycle is an effective tool to strengthen the quality of the hospital services, especially when related to quality of patient's medical records.

RESUMEN Objetivo: Implementar y evaluar un programa para mejorar los registros en la historia clínica de un hospital del município de Farias Brito, estado de Ceará, Brasil. Material y Método: Estudio con enfoque cuantitativo, cuasi-experimental del tipo antes y después de la evaluación de criterios de calidad. La encuesta se realizó entre enero de 2017 y julio de 2018. Se evaluaron 87 registros de historias clínicas, seleccionados al azar, realizados por el equipo multiprofesional, totalizando 35 profesionales. Se llevó a cabo en seis pasos: 1) Identificación y priorización de un problema de calidad, 2) Análisis de las causas del problema, 3) Desarrollo de criterios para evaluar el nivel de calidad, 4) Evaluación del nivel de calidad, 5 ) Intervención de mejora dirigida a los criterios más problemáticos y 6) Reevaluación del nivel de calidad. Para evaluar la calidad, antes y después de la intervención, se calculó la estimación puntual y el intervalo de confianza (IC = 95%) del nivel de cumplimiento de ocho criterios. Para evaluar el efecto de la intervención, se estimó la mejora absoluta y relativa de cada prueba de hipótesis unilateral mediante el cálculo del valor Z. En el ciclo de mejora, los datos se analizaron mediante el diagrama de Pareto. Resultados: En la medición inicial se obtuvieron tasas de cumplimiento de 36,30% en promedio, mientras que en la segunda medición hubo un aumento en el promedio de cumplimiento de todos los criterios en 19,45%. Conclusión: Se observa que el ciclo de mejora es una herramienta eficaz para fortalecer la calidad de los servicios desarrollados, especialmente la calidad de los registros en la Historia clínica de los pacientes.

RESUMO

Personal health records could help patients overcome the anxiety related to gaps on health related information. The objective of this research was to explore what type of information was perceived by patients as useful to receive as a notification on their PHR as a framework for the design of a patient-centered notification system. We applied a qualitative approach followed by usability tests. From interviews to patients, we obtained main categories of notifications to include according to its perceived usefulness while, from iterative usability tests, we obtained a final version of prototypes developed according to patient-interface interaction experiences. This research helped us to understand patients needs and behavior to design an efficient notification system and also represents the first step for the development of clinical decision support systems for patients into the PHR with the potential to improve clinical outcomes and healthcare delivery.

Assuntos

RESUMO

The Ministry of Health (MoH) stated the National Digital Health Strategy 2018-2024 in order to establish the conceptual guidelines for the design and development of interoperable health information systems. It included the creation of a National Digital Health Network, and a Citizen Health Portal to inform and empower patients about their rights. For instance, the Digital Vaccination Card is already available and has equal legal validity as its paper version. The platform also works as a personal privacy manager, to configure the consent for Health Information Exchange through the network, or to check the access logs. This paper outlines the implementation experience of this powerful tool at a national level.

Assuntos

RESUMO

The aim of this research was to understand the needs of patients with psoriasis and the concerns of specialists in this pathology. Interviews with adults with psoriasis and dermatologists were conducted. We found 4 main dimensions: Frequently asked questions; Social stigma; Education to patients and Patient empowerment. The findings represent a first approach to understand the needs and perceptions of patients and dermatologists, for the design of a virtual community.

Assuntos

RESUMO

ABSTRACT Objective: to evaluate the effect of the implementation of a quality improvement cycle in the completion of occurrence forms of a Mobile Emergency Service. Methods: this is a time series, quantitative, quasi-experimental study without control group, with three quality assessments in which was used an improvement cycle for adequacy of health records in Mobile Emergency Service Patos. Results: in 100% of the seven criteria, there was improvement between evaluations. Noncompliance with criteria reduced from 95 cases in the first evaluation to eight cases in the third evaluation. Conclusions: the representation of joint results between the three evaluations highlighted progressive improvement in the compliance with each criterion.

RESUMEN Objetivos: evaluar el efecto de la implantación de un ciclo de mejora de la calidad al completar los formularios de ocurrencias de un Servicio Móvil de Atención de Emergencia. Métodos: esta es una investigación de series de tiempo, cuantitativa, cuasi experimental, sin grupo de control, con tres evaluaciones de calidad, utilizando un ciclo de mejora en la adecuación de los registros de salud en Servicio Móvil de Atención de Emergencia Patos. Resultados: el 100% de los siete criterios mostraron una mejora entre las evaluaciones y se observó que el incumplimiento de estos criterios se redujo de 95 casos en la primera evaluación a ocho casos en la tercera evaluación. Conclusiones: la representación de los resultados conjuntos entre las tres evaluaciones pudo destacar una mejora progresiva en el cumplimiento de cada criterio.

RESUMO Objetivos: avaliar o efeito da implantação de um ciclo de melhoria da qualidade no preenchimento das fichas de ocorrências de um Serviço de Atendimento Móvel de Urgência. Métodos: estudo quase experimental de série temporal, quantitativo, sem grupo controle, com três avaliações da qualidade. Foi utilizado o ciclo de melhoria na adequação dos registros de saúde no Serviço de Atendimento Móvel de Urgência Patos. Resultados: houve melhorias em 100% dos sete critérios entre as avaliações e redução do não cumprimento desses critérios de 95 casos na primeira avaliação, para oito casos na terceira avaliação. Conclusões: a representação dos resultados conjuntos entre as três avaliações destacou a melhoria progressiva nos cumprimentos de cada critério.

RESUMO

Medicine has evolved considerably in recent decades in part thanks to information and communication technologies in health (ICTs). However, face-to-face consultations continue to be the predominant model, since alternatives such as telemedicine are still the subject of debate. On the other hand, in some very specific specialties, centralization is relevant, mainly due to the low frequency and prevalence of diseases, as well as the need to have highly specialized professionals, causing problems in terms of accessibility and costs for the health system. In this study we have analyzed the first consultations to an orthopedics oncology service at a tertiary institution and performed an analysis of economic costs was carried out between 2 possible scenarios: face-to-face consultations versus telemedicine. Analyzing the 2 scenarios, there would be a cost-benefit in the use of telemedicine leading to a decrease in healthcare cost between 12.2% and 72%.

Assuntos

RESUMO

Technology has led to the communication of the hospitalized patient and their family with clinical knowledge. The objective of this study is to describe the rate of use of the Inpatient Personal Health Record of Hospital Italiano de Buenos Aires. A cross-sectional study was conducted between May and September of 2018. The rate of use was 2.10% (95% CI 1.89-2.32). The most used functionalities were analyzed. New strategies are needed to improve the rate of use.

Assuntos

RESUMO

RESUMO OBJETIVO: analisar fatores associados ao preenchimento da caderneta de saúde da criança para fomentar a coordenação do cuidado e acesso à saúde. MÉTODO: estudo quantitativo, realizado entre janeiro e junho de 2016, em município paulista. Entrevistadas 284 mães e observadas as cadernetas de seus filhos; considerados significativos resultados com p< 0,05. RESULTADOS: identificou-se baixo preenchimento para pré-natal (5%), dados do recém-nascido (40%), exames de triagem neonatal (10%) e alta hospitalar (6%). Escolaridade materna (p=0,006) foi fator associado ao correto preenchimento de dados do recém-nascido. CONCLUSÃO: a caderneta não tem sido fonte de dados para seguimento da atenção ao recém-nascido no município investigado. Favorecer continuidade da atenção após o nascimento e a execução de registros adequados potencializa a coordenação do cuidado. O preenchimento desse instrumento, incorporado às práticas dos serviços e dos profissionais de saúde em todos os pontos da rede de atenção à criança, traz contribuições ao acesso à saúde.

RESUMEN OBJETIVO: analizar factores asociados al hecho de completar el cuaderno de salud infantil para fomentar la coordinación del cuidado y el acceso a la salud. MÉTODO: estudio cuantitativo que se realizó entre enero y junio de 2016, en municipio de São Paulo. Se entrevistaron 284 madres y se observaron los cuadernos de sus hijos; considerándose significativos resultados con p< 0,05. RESULTADOS: se identificó bajo índice de relleno para prenatal (5%), datos del recién nacido (40%), exámenes de selección neonatal (10%) y alta hospitalaria (6%). Escolaridad materna (p=0,006) fue factor asociado al hecho de completar correctamente los datos del recién nacido. CONCLUSIÓN: el cuaderno no viene siendo fuente de datos para la atención al recién nacido en el municipio investigado. Favorecer la continuidad de la atención tras el nacimiento y la realización de registros adecuados potencializa la coordinación del cuidado. Completar el cuaderno de salud infantil, además de las prácticas de los servicios y de los profesionales de salud en todos los puntos de la red de atención al niño trae contribuciones importantes al acceso a la salud.

ABSTRACT OBJECTIVE: analyze factors associated with filling in child health booklets to promote care coordination and access to health care. METHOD: quantitative study conducted between January and June 2016, in a city in the state of São Paulo. A total of 284 mothers were interviewed and the booklets of their children were examined; results with p< 0.05 were considered significant. RESULTS: low completion was identified for prenatal (5%), newborn data (40%), newborn screening (10%) and discharge (6%). Maternal education (p=0.006) was a factor associated with proper filling in of newborn data. Conclusion: the booklets were not a source of data for continued newborn care in the city investigated. Care coordination is strengthened by continued post-birth care and keeping adequate records. Filling in this instrument, incorporated into the practices of health services and professionals at every point in the childcare network enhances healthcare access.

Assuntos

RESUMO

Este artigo constitui um relato de experiência, o qual aborda e problematiza o registro de informações nos prontuários coletivos em equipes de Saúde da Família pelos profissionais de Psicologia vinculados a um Programa de Residência Multiprofissional. O Conselho Federal de Psicologia destaca que o psicólogo, em serviço multiprofissional, deve fazer uso do prontuário único, registrando apenas as informações necessárias aos objetivos do trabalho. Essa questão é complexa uma vez que envolve aspectos éticos e de sigilo profissional. Entretanto, entende-se que tal temática precisa ser discutida pelos profissionais de Psicologia e no cotidiano das equipes, para qualificar o cuidado em saúde.

This study is an experience report that approaches and problematizes the act of recording information on collective charts in the context of Family Health teams carried out by Psychology professionals of a Multiprofessional Residency Program. The Federal Council of Psychology highlights the psychologist that works in a public service should register the information on the chart that the other professionals have access to, recording only information related to the aim of his task. This is a complex subject, once it involves ethical and professional secrecy aspects. Such aspects must be discussed by Psychology professionals in the context of health teams, so as to improve health care.

Este artículo se constituye en un relato de experiencia, el cual aborda y problematiza el registro de informaciones en las historias clínicas colectivas, en equipos de Salud de la Familia, por los profesionales de Psicología vinculados a un Programa de Residencia Multiprofesional. El Consejo Federal de Psicología destaca que el psicólogo en servicio multiprofesional, debe hacer uso de una historia clínica única, registrando solamente las informaciones necesarias para los objetivos del trabajo. Esta cuestión es compleja, una vez que implica aspectos éticos y de secreto profesional. Sin embargo, se entiende que esta temática debe ser discutida por los profesionales de la Psicología y en el cotidiano de los equipos, para calificar el cuidado de la salud.

Assuntos

RESUMO

BACKGROUND: Information and communication technology (ICT) has transformed the health care field worldwide. One of the main drivers of this change is the electronic health record (EHR). However, there are still open issues and challenges because the EHR usually reflects the partial view of a health care provider without the ability for patients to control or interact with their data. Furthermore, with the growth of mobile and ubiquitous computing, the number of records regarding personal health is increasing exponentially. This movement has been characterized as the Internet of Things (IoT), including the widespread development of wearable computing technology and assorted types of health-related sensors. This leads to the need for an integrated method of storing health-related data, defined as the personal health record (PHR), which could be used by health care providers and patients. This approach could combine EHRs with data gathered from sensors or other wearable computing devices. This unified view of patients' health could be shared with providers, who may not only use previous health-related records but also expand them with data resulting from their interactions. Another PHR advantage is that patients can interact with their health data, making decisions that may positively affect their health. OBJECTIVE: This work aimed to explore the recent literature related to PHRs by defining the taxonomy and identifying challenges and open questions. In addition, this study specifically sought to identify data types, standards, profiles, goals, methods, functions, and architecture with regard to PHRs. METHODS: The method to achieve these objectives consists of using the systematic literature review approach, which is guided by research questions using the population, intervention, comparison, outcome, and context (PICOC) criteria. RESULTS: As a result, we reviewed more than 5000 scientific studies published in the last 10 years, selected the most significant approaches, and thoroughly surveyed the health care field related to PHRs. We developed an updated taxonomy and identified challenges, open questions, and current data types, related standards, main profiles, input strategies, goals, functions, and architectures of the PHR. CONCLUSIONS: All of these results contribute to the achievement of a significant degree of coverage regarding the technology related to PHRs.

Assuntos

RESUMO

OBJECTIVE: To investigate organizational strategies to promote personal health records (PHRs) adoption with a focus on patients with chronic disease. METHODS: Using semi-structured interviews and a web-based survey, we sampled US health delivery organizations which had implemented PHRs for at least 12 months, were recognized as PHR innovators, and had scored highly in national patient satisfaction surveys. Respondents had lead positions for clinical information systems or high-risk population management. Using grounded theory approach, thematic categories were derived from interviews and coupled with data from the survey. RESULTS: Interviews were conducted with 30 informants from 16 identified organizations. Organizational strategies were directed towards raising patient awareness via multimedia communications, and provider acceptance and uptake. Strategies for providers were grouped into six main themes: organizational vision, governance and policies, work process redesign, staff training, information technology (IT) support, and monitoring and incentives. Successful organizations actively communicated their vision, engaged leaders at all levels, had clear governance, planning, and protocols, set targets, and celebrated achievement. The most effective strategy for patient uptake was through health professional encouragement. No specific outreach efforts targeted patients with chronic disease. Registration and PHR activity was routinely measured but without reference to a denominator population or high risk subpopulations. DISCUSSION AND CONCLUSION: Successful PHR implementation represents a social change and operational project catalyzed by a technical solution. The key to clinician acceptance is making their work easier. However, organizations will likely not achieve the value they want from PHRs unless they target specific populations and monitor their uptake.

Assuntos

RESUMO

Objetivo: Analizar el Registro para la Localización y la Caracterización de las personas con discapacidad, en relación a los marcos de referencia. Metodología: Investigación de tipo descriptiva transversal, desarrollada entre los años 2009-2010 en la Universidad de Boyacá, que contempla la aplicación del registro en los municipios del departamento y posterior interpretación de la información, con análisis de contenido y estadístico descriptivo; este último, realizado con base en los datos suministrados por el Departamento Nacional de Estadísticas y por el Ministerio de Salud y Protección Social, de los 123 municipios de Boyacá (42.705 registros), denominado “Análisis del Registro para la Localización y la Caracterización de las personas con discapacidad, en relación con los marcos de referencia en el departamento de Boyacá”. Resultados: La distribución de las preguntas del registro, se focalizan en detectar las características correspondientes al marco de protección social básica con el 58,42%, el cual se centra en la subsistencia, protección y afecto; con un 38,20% y en segunda instancia, se ubica el marco de compensación y cohesión social y finalmente, se encuentra el marco de equiparación y desarrollo local con un 3,37%. De igual forma, se observa que el predominio de las personas con discapacidad, es del sexo femenino mayor de 60 años, ubicada en el área rural dispersa, con bajos niveles de escolaridad y escasa participación laboral y social. Conclusiones: Se evidenció que la mayor cantidad de preguntas que contiene el registro, corresponden al marco denominado de protección social básica, que busca conocer las características sociodemográficas, funcionales y de salud de la población...

Assuntos

RESUMO

La salud es una esfera cuya proyección actual se ha orientando hacia una incorporación progresiva de las tecnologías. Actualmente existe un cambio de paradigma, impulsándose el concepto de informática orientada al paciente, con el fin de que estos participen activamente en el cuidado de su salud. Los cambios en la modalidad de atención y avances tecnológicos permitieron el nacimiento de una nueva forma de comunicación entre médicos y pacientes: los Registros Personales de Salud. El presente trabajo tiene como objetivo explorar las distintas formas de abordar la implementación de los Registros Personales de Salud para evaluar la posibilidad de su utilización en Cuba, contribuyendo a la utilización de las nuevas tecnologías para brindarles a los pacientes un rol más importante en el cuidado de su salud. Cuba a pesar de sus limitaciones, apuesta por la informatización de la sociedad. La adopción de los Registros Personales de Salud trae aparejado un grupo de facilidades y barreras a considerar para obtener el éxito(AU)

Health is a field whose current projection has been moving towards a progressive incorporation of technology. Currently there is a paradigm change, pushing the concept of patient-oriented informatics, in order that the patients are actively involved in the care of their health. Changes in treatment approaches and technological advances enabled the birth of a new form of communication between doctors and patients: Personal Health Records. This study aims to explore ways to address the implementation of Personal Health Records to assess the possibility of its use in Cuba. It will help with the use of new technologies to offer patients a greater role in their health care. Cuba, despite its limitations, bet on the computerization of society. Adoption of Personal Health Records brings up a group of facilities and barriers to consider for success(AU)

Assuntos