Qualitative Study to Design an Online Community for Patients with Psoriasis.

Colussi, Giuliana; Sommer, Janine; Simón, Mariana; Bruchanski, Lucila; Luna, Daniel

Colussi, Giuliana; Sommer, Janine; Simón, Mariana; Bruchanski, Lucila; Luna, Daniel.

Afiliação

Colussi G; Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Sommer J; Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Simón M; Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Bruchanski L; Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Luna D; Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.

Stud Health Technol Inform ; 270: 1375-1376, 2020 Jun 16.

Article em En | MEDLINE | ID: mdl-32570666

RESUMO

The aim of this research was to understand the needs of patients with psoriasis and the concerns of specialists in this pathology. Interviews with adults with psoriasis and dermatologists were conducted. We found 4 main dimensions: Frequently asked questions; Social stigma; Education to patients and Patient empowerment. The findings represent a first approach to understand the needs and perceptions of patients and dermatologists, for the design of a virtual community.

Assuntos

Psoríase; Humanos; Participação do Paciente; Pesquisa Qualitativa; Estigma Social

Palavras-chave

Self-Help Groups; personal health records; psoriasis

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Psoríase Tipo de estudo: Qualitative_research Aspecto: Patient_preference Limite: Humans Idioma: En Revista: Stud Health Technol Inform Assunto da revista: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Argentina País de publicação: Holanda

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