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Impact of hemispherotomy on quality of life and burden of caregivers in children and adolescents: a retrospective observational study.
Daniel, Bruna Frizzera; Leal, Suenia Timotheo Figueiredo; Sakamoto, Américo Ceiki; Thomé, Ursula; Machado, Hélio Rubens; Santos, Marcelo Volpon; Dos Santos, Antônio Carlos; Hamad, Ana Paula Andrade.
Afiliação
  • Daniel BF; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.
  • Leal STF; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.
  • Sakamoto AC; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.
  • Thomé U; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.
  • Machado HR; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.
  • Santos MV; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.
  • Dos Santos AC; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil.
  • Hamad APA; Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil. anahamad@fmrp.usp.br.
Childs Nerv Syst ; 2024 Sep 08.
Article em En | MEDLINE | ID: mdl-39245785
ABSTRACT

PURPOSE:

To evaluate QOL and caregiver burden of children and teenagers submitted to hemispherotomy for pharmacoresistant epilepsy, by comparing pre and post-surgical intervention data. MATERIALS AND

METHODS:

Retrospective analysis of pediatric patients submitted to surgical hemispherotomy before intervention (preOP) and their follow-up at 6 months (6 M PO) and 2 years (2Y PO) after surgery. QOL was evaluated through the Quality of Life in Childhood Epilepsy (QVCE-50) questionnaire and caregiver burden, through the Zarit Burden Interview (ZBI) tool.

RESULTS:

Twenty-two patients were included in the study. Sixteen patients (72%) were classified as Engel I at 2Y PO follow-up. QVCE-50 scale showed improvement of total QOL at 2Y PO. In relation to QVCE-50-specific domains, there was an improvement in the physical domain and in the cognitive-education a decrease in psychological and a stabilization in social/familiar domain scores. The majority of caregivers classified their burden as mild to moderate, with no PO improvement.

CONCLUSIONS:

Hemispherotomy represents an effective seizure control treatment, as well as it contributes to improvement of QOL, particularly in the physical domain and in spite of children's physical and cognitive limitations. However, no improvement in caregiver burden was observed, probably due to the chronic condition of these patients, which might be worsened by social issues.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Childs Nerv Syst Assunto da revista: NEUROLOGIA / PEDIATRIA Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Brasil País de publicação: Alemanha
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: Childs Nerv Syst Assunto da revista: NEUROLOGIA / PEDIATRIA Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Brasil País de publicação: Alemanha