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Patients' and Caregivers' Experiences Navigating the Burden of Atopic Dermatitis in Argentina.
Capozza, Korey; Tu, Michelle; Schwartz, Alan; Johnson, Jodi L; Ladner, Mónica.
Afiliação
  • Capozza K; Global Parents for Eczema Research (GPER), Santa Barbara, CA 93101, USA.
  • Tu M; Global Parents for Eczema Research (GPER), Santa Barbara, CA 93101, USA.
  • Schwartz A; Departments of Medical Education and Pediatrics, University of Illinois, Chicago, IL 60607, USA.
  • Johnson JL; Departments of Pathology and Dermatology, Northwestern University, Chicago, IL 60611, USA.
  • Ladner M; Asociación de Dermatitis Atópica Argentina (ADAR), Buenos Aires C1424BDV, Argentina.
Medicina (Kaunas) ; 60(4)2024 Mar 31.
Article em En | MEDLINE | ID: mdl-38674230
ABSTRACT
Background and

Objectives:

Little is known about patients' and caregivers' experiences with atopic dermatitis (AD) in Argentina, so a survey was administered to learn more. Materials and

Methods:

A 53-item anonymous survey was administered in Spanish to adult AD patients (n = 334) and caregivers (n = 339) of pediatric AD patients in Argentina (total n = 673). Demographics, healthcare provider information, financial burden, disease severity, disease burden, level of disease-specific education, and experience with shared physician/patient decision making were collected. Linear and logistic regression models were used for statistical comparisons.

Results:

Survey respondents were overwhelmingly female (90.8%), as was the overall patient population (72.8%). Patients were seen mostly by healthcare specialists (66.8% dermatologists, 13.5% pediatricians, 7.7% allergists, and 7.2% general practitioners). Only 2.8% of respondents reported no symptoms, while 33.3%, 52.4%, and 11.5% reported mild, moderate, and severe AD disease, respectively. Anxiety/depression and pain/discomfort were the most impactful on respondents' quality of life. Caregivers of children with moderate to severe AD and adult patients with severe AD reported a significant financial burden, including using savings or not purchasing food or other essentials to afford medical care. Few people reported receiving disease-specific education or having their own treatment priorities taken into consideration. For adult patients, receiving disease education and being asked about treatment priorities were associated with higher treatment satisfaction and AD control.

Discussion:

Mental health, pain/discomfort, and financial worries are the most important burdens for adult AD patients and caregivers of children with AD in Argentina. We recommend prioritizing disease-specific education and shared decision making to improve AD care in Argentina.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidadores / Efeitos Psicossociais da Doença / Dermatite Atópica Limite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged País/Região como assunto: America do sul / Argentina Idioma: En Revista: Medicina (Kaunas) Assunto da revista: MEDICINA Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Suíça
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidadores / Efeitos Psicossociais da Doença / Dermatite Atópica Limite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged País/Região como assunto: America do sul / Argentina Idioma: En Revista: Medicina (Kaunas) Assunto da revista: MEDICINA Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Estados Unidos País de publicação: Suíça