How Are Leading Research Institutions Engaging with Data Sharing Tools and Programs?
AMIA Annu Symp Proc
; 2023: 397-406, 2023.
Article
em En
| MEDLINE
| ID: mdl-38222386
ABSTRACT
With widespread electronic health record (EHR) adoption and improvements in health information interoperability in the United States, troves of data are available for knowledge discovery. Several data sharing programs and tools have been developed to support research activities, including efforts funded by the National Institutes of Health (NIH), EHR vendors, and other public- and private-sector entities. We surveyed 65 leading research institutions (77% response rate) about their use of and value derived from ten programs/tools, including NIH's Accrual to Clinical Trials, Epic Corporation's Cosmos, and the Observational Health Data Sciences and Informatics consortium. Most institutions participated in multiple programs/tools but reported relatively low usage (even when they participated, they frequently indicated that fewer than one individual/month benefitted from the platform to support research activities). Our findings suggest that investments in research data sharing have not yet achieved desired results.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Disseminação de Informação
/
Registros Eletrônicos de Saúde
Limite:
Humans
País/Região como assunto:
America do norte
Idioma:
En
Revista:
AMIA Annu Symp Proc
Assunto da revista:
INFORMATICA MEDICA
Ano de publicação:
2023
Tipo de documento:
Article
País de publicação:
Estados Unidos