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Clinically Indicated Genomic Sequencing of Children in Foster Care: Legal and Ethical Issues.
Smith, Hadley Stevens; Bonkowski, Emily S; Hickingbotham, Madison R; Pereira, Stacey; May, Thomas; Guerrini, Christi J.
Afiliação
  • Smith HS; Department of Population Medicine, Precision Medicine Translational Research (PROMoTeR) Center, Harvard Medical School and Harvard Pilgrim Health Care Institute, Boston, MA. Electronic address: hadley.smith@hphci.harvard.edu.
  • Bonkowski ES; St. Jude Children's Research Hospital, Memphis, TN; University of Washington Institute for Public Health Genetics, Seattle, WA.
  • Hickingbotham MR; Department of Population Medicine, Precision Medicine Translational Research (PROMoTeR) Center, Harvard Medical School and Harvard Pilgrim Health Care Institute, Boston, MA.
  • Pereira S; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
  • May T; Department of Medical Education and Clinical Sciences, Washington State University, Pullman, WA.
  • Guerrini CJ; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX.
J Pediatr ; 262: 113612, 2023 11.
Article em En | MEDLINE | ID: mdl-37468037
There are approximately 400 000 children in foster care in the US, approximately one-half of whom have chronic health problems and approximately 10% of whom have complex healthcare needs. Given the increasing relevance of genomic sequencing to guide clinical care for children with rare, chronic, and undiagnosed conditions, it may be an important component of diagnostic evaluation for children in foster care. Clinically indicated genomic sequencing may provide information that has health implications for children in foster care, as well as for their biological parents and other relatives. Whether and how genomic sequencing results impact legal decision making and family court outcomes is not yet well-understood. We describe scenarios that highlight legal, ethical, and policy issues surrounding genomic sequencing for children in foster care using 3 cases adapted from real-world events. Together, these cases highlight important yet underexplored issues that arise when genomic information has legal relevance in family court and ethical implications for child and family well-being. As genomic sequencing becomes more routine for the general pediatric population, additional research is needed to better understand its impacts on children and other stakeholders within the foster care system.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Cuidados no Lar de Adoção Tipo de estudo: Prognostic_studies Aspecto: Ethics Limite: Child / Humans Idioma: En Revista: J Pediatr Ano de publicação: 2023 Tipo de documento: Article País de publicação: Estados Unidos
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Cuidados no Lar de Adoção Tipo de estudo: Prognostic_studies Aspecto: Ethics Limite: Child / Humans Idioma: En Revista: J Pediatr Ano de publicação: 2023 Tipo de documento: Article País de publicação: Estados Unidos