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PaísDI: Feasibility and effectiveness of an advocacy program for adults with intellectual disability and their stakeholders' groups in Chile.
Tenorio, Marcela; Aparicio, Andrés; Arango, Paulina Sofía; Fernández, Ana Karen; Fergusson, Alfonso; Turull, Jaime; Pizarro, Ricardo.
Afiliação
  • Tenorio M; School of Psychology, Universidad de los Andes, Santiago, Chile.
  • Aparicio A; Millennium Institute for Caregiving Research, Santiago, Chile.
  • Arango PS; Millennium Institute for Caregiving Research, Santiago, Chile.
  • Fernández AK; School of Psychology, Universidad de los Andes, Santiago, Chile.
  • Fergusson A; Millennium Institute for Caregiving Research, Santiago, Chile.
  • Turull J; School of Psychology, Universidad de los Andes, Santiago, Chile.
  • Pizarro R; Independent Researcher.
J Appl Res Intellect Disabil ; 35(2): 633-638, 2022 Mar.
Article em En | MEDLINE | ID: mdl-34658112
BACKGROUND: People with intellectual disability in Chile face individual and collective barriers to social participation. Lack of knowledge about their rights and tools for effective self-advocacy seem to be key elements that need to be improved to facilitate participation. METHOD: We present PaísDI, a 16 h long manualised program created by self-advocates in collaboration with an interdisciplinary team, with four modules: rights and intellectual disability, leadership in intellectual disability, effective communication and financial considerations of social projects. This quasi-experimental study had 349 participants, divided in three groups: people with intellectual disability, relatives and professionals. Feasibility and effectiveness where measured. RESULTS: The program is shown to be viable and effective, especially in its impact on self-perception for self-advocacy activities. CONCLUSION: The discussion highlights Chile's historic debt in creating policies that promote self-determination, knowledge and the empowerment of people with intellectual disability, to bolster their participation as citizens.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Deficiência Intelectual Tipo de estudo: Evaluation_studies Aspecto: Implementation_research Limite: Adult / Humans País/Região como assunto: America do sul / Chile Idioma: En Revista: J Appl Res Intellect Disabil Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Chile País de publicação: Reino Unido

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Deficiência Intelectual Tipo de estudo: Evaluation_studies Aspecto: Implementation_research Limite: Adult / Humans País/Região como assunto: America do sul / Chile Idioma: En Revista: J Appl Res Intellect Disabil Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Chile País de publicação: Reino Unido