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Parents of Children with Sickle Cell Disease Are Interested in Preimplantation Genetic Testing.
Attia, Monica; Kripalani, Shawn; Darbari, Isha; Nickel, Robert Sheppard.
Afiliação
  • Attia M; The George Washington University School of Medicine and Health Sciences, Washington, DC.
  • Kripalani S; The George Washington University School of Medicine and Health Sciences, Washington, DC.
  • Darbari I; University of Maryland School of Medicine, Baltimore, MD.
  • Nickel RS; The George Washington University School of Medicine and Health Sciences, Washington, DC; Children's National Hospital, Division of Hematology, Washington, DC. Electronic address: rnickel@childrensnational.org.
J Pediatr ; 223: 178-182.e2, 2020 08.
Article em En | MEDLINE | ID: mdl-32586619
OBJECTIVE: To evaluate awareness of and attitudes toward preimplantation genetic testing (PGT) for sickle cell disease (SCD) among parents of children with SCD. STUDY DESIGN: Parents of children with SCD were given an educational handbook on PGT before a routine SCD clinic visit. After their clinic visit, parents were asked to complete an anonymous survey. RESULTS: Of 83 patents approached, 67 (81%) completed the survey. Only 16 of the 67 parents (24%) were previously aware of PGT for SCD. After our clinic-based education, 65 of the 67 parents (97%) indicated that it was important or very important for parents of children with SCD to know about PGT. Among parents interested in having more children, 29 of 32 (91%) would personally consider using PGT if covered by insurance. CONCLUSIONS: Parents of children with SCD are generally not aware of PGT. When educated in clinic, parents viewed information on PGT as valuable. Pediatricians and other health care professionals should inform parents of children with SCD about this reproductive option.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Cuidados Pré-Operatórios / Testes Genéticos / Transplante de Células-Tronco / Anemia Falciforme Tipo de estudo: Prognostic_studies Limite: Adult / Child / Female / Humans / Male Idioma: En Revista: J Pediatr Ano de publicação: 2020 Tipo de documento: Article País de publicação: Estados Unidos
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Cuidados Pré-Operatórios / Testes Genéticos / Transplante de Células-Tronco / Anemia Falciforme Tipo de estudo: Prognostic_studies Limite: Adult / Child / Female / Humans / Male Idioma: En Revista: J Pediatr Ano de publicação: 2020 Tipo de documento: Article País de publicação: Estados Unidos