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Coping and coping assistance among children with sickle cell disease and their parents.
Hildenbrand, Aimee K; Barakat, Lamia P; Alderfer, Melissa A; Marsac, Meghan L.
Afiliação
  • Hildenbrand AK; *Center for Injury Research and Prevention ‡Division of Oncology, The Children's Hospital of Philadelphia †Department of Psychology, Drexel University §Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA.
J Pediatr Hematol Oncol ; 37(1): 25-34, 2015 Jan.
Article em En | MEDLINE | ID: mdl-24327131
The ways in which a family copes with the physical and psychosocial burdens of sickle cell disease (SCD) can influence the child and family functioning. However, few studies have examined SCD-related stressors beyond pain or how children and parents cope with these stressors. This study aimed to describe child coping and parent attempts to help their children cope (ie, coping assistance) with a range of SCD stressors by using a triangulated mixed methods design. We also explored convergence between findings from qualitative interviews and quantitative coping inventories. Fifteen children (aged 6 to 14 years) with SCD and their parents (N=15) completed semistructured interviews and self-report measures to assess SCD-related stressors, coping, and coping assistance strategies. Findings indicate that children experience numerous stressors related to SCD and its treatment, including, but not limited to, pain. To manage these stressors, families employ a range of approach and avoidance-oriented coping strategies. Quantitative and qualitative assessments provided complementary and unique contributions to understanding coping processes among children with SCD and their parents. Examining a broad range of stressors and integrating multiple assessment methods helps improve our understanding of coping with pediatric SCD, which may inform clinical practice and family-focused intervention development.
Assuntos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Adaptação Psicológica / Anemia Falciforme Tipo de estudo: Qualitative_research Limite: Adolescent / Child / Female / Humans / Male Idioma: En Revista: J Pediatr Hematol Oncol Assunto da revista: HEMATOLOGIA / NEOPLASIAS / PEDIATRIA Ano de publicação: 2015 Tipo de documento: Article País de publicação: Estados Unidos

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pais / Adaptação Psicológica / Anemia Falciforme Tipo de estudo: Qualitative_research Limite: Adolescent / Child / Female / Humans / Male Idioma: En Revista: J Pediatr Hematol Oncol Assunto da revista: HEMATOLOGIA / NEOPLASIAS / PEDIATRIA Ano de publicação: 2015 Tipo de documento: Article País de publicação: Estados Unidos