Psychosocial issues and coping strategies in families affected by urea cycle disorders.
J Pediatr
; 138(1 Suppl): S72-80, 2001 Jan.
Article
em En
| MEDLINE
| ID: mdl-11148552
A survey was sent to the American members of the National Urea Cycle Disorders Foundation to ascertain the types and extent of stress imposed on families who have a child with a urea cycle defect. Forty percent of the surveys were returned. The greatest sources of stress were financial, fear of death, and the restrictions imposed by the diet. Other than removal of the economic stress and uncertainty, the results did not suggest that any specific support systems required augmentation. Instructions to mitigate frustrations occurring in emergency situations would, however, be a great help to families.
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Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Estresse Psicológico
/
Ureia
/
Adaptação Psicológica
/
Saúde da Família
/
Erros Inatos do Metabolismo dos Aminoácidos
Limite:
Adult
/
Child
/
Female
/
Humans
/
Male
Idioma:
En
Revista:
J Pediatr
Ano de publicação:
2001
Tipo de documento:
Article
País de afiliação:
Estados Unidos
País de publicação:
Estados Unidos