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Management framework paradigms for disorders of sex development
Telles-Silveira, Mariana; Knobloch, Felicia; Kater, Claudio E..
Afiliação
  • Telles-Silveira, Mariana; Universidade Federal de São Paulo. Escola Paulista de Medicina. Departamento de Medicina. São Paulo. BR
  • Knobloch, Felicia; Universidade Federal de São Paulo. Escola Paulista de Medicina. Departamento de Medicina. São Paulo. BR
  • Kater, Claudio E.; Universidade Federal de São Paulo. Escola Paulista de Medicina. Departamento de Medicina. São Paulo. BR
Arch. endocrinol. metab. (Online) ; 59(5): 383-390, Oct. 2015.
Article em En | LILACS | ID: lil-764115
Biblioteca responsável: BR1.1
ABSTRACT
Until 2005, questions regarding medical treatment and diagnostic information on Disorders of Sex Development (DSD) were not systematically discussed with both the patients and their families; however, the way these patients are currently treated have been changing with time. Interventional changes in the clinical-psychotherapeutic-surgical areas of DSD determine not only different medical recommendations but also help to place the patient and the family into the decisional process of therapy. We must consider two paradigmatic periods that have influenced and transformed the clinical management framework of patients with DSD a) The "Money era" (1955), which emphasized the role of the gonads as the diagnostic criterion, having the environment as determinant of the sex identity; and b) The Chicago Consensus (2005) phase, in which the role of genetics and molecular biology was critical for an early identification, as well as in building a proper sex identity, emphasizing ethical questions and the "stigma culture". In addition, recent data have focused on the importance of interdisciplinarity and statements on questions concerning Human Rights as key factors in treatment decision making. Despite each of these management models being able to determine specific directions and recommendations regarding the clinical handling of these patients, we verify that a composite of these several models is the clinical routine nowadays. In the present paper, we discuss these several paradigms, and pinpoint clinical differences and their unfolding regarding management of DSD patients and their families.
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Texto completo: 1 Coleções: 01-internacional Base de dados: LILACS Assunto principal: Transtornos do Desenvolvimento Sexual / Conferências de Consenso como Assunto / Identidade de Gênero Tipo de estudo: Guideline / Prognostic_studies Aspecto: Ethics / Patient_preference Limite: Female / Humans / Male País/Região como assunto: America do norte Idioma: En Revista: Arch. endocrinol. metab. (Online) Assunto da revista: ENDOCRINOLOGIA / METABOLISMO Ano de publicação: 2015 Tipo de documento: Article País de afiliação: Brasil País de publicação: Brasil

Texto completo: 1 Coleções: 01-internacional Base de dados: LILACS Assunto principal: Transtornos do Desenvolvimento Sexual / Conferências de Consenso como Assunto / Identidade de Gênero Tipo de estudo: Guideline / Prognostic_studies Aspecto: Ethics / Patient_preference Limite: Female / Humans / Male País/Região como assunto: America do norte Idioma: En Revista: Arch. endocrinol. metab. (Online) Assunto da revista: ENDOCRINOLOGIA / METABOLISMO Ano de publicação: 2015 Tipo de documento: Article País de afiliação: Brasil País de publicação: Brasil