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Rosacea-specific quality of life questionnaire: translation, cultural adaptation and validation for Brazilian Portuguese
Tannus, Flávia Cisi; Picosse, Fabíola Rosa; Soares, Juliana Marques; Bagatin, Edileia.
Afiliação
  • Tannus, Flávia Cisi; Universidade Federal de São Paulo. Department of Dermatology. São Paulo. BR
  • Picosse, Fabíola Rosa; Universidade Federal de São Paulo. Department of Dermatology. São Paulo. BR
  • Soares, Juliana Marques; Universidade Federal de São Paulo. Postgraduate Program of Translational Medicine. São Paulo. BR
  • Bagatin, Edileia; Universidade Federal de São Paulo. Department of Dermatology. São Paulo. BR
An. bras. dermatol ; An. bras. dermatol;93(6): 836-842, Nov.-Dec. 2018. tab
Article em En | LILACS | ID: biblio-973644
Biblioteca responsável: BR1.1
ABSTRACT
Abstract

Background:

Brazil does not have a rosacea-specific quality of life questionnaire.

Objectives:

translation into Brazilian Portuguese, development of cultural adaptation, and validation of the RosaQoL disease-specific questionnaire for rosacea of any subtype.

Methods:

the recommended procedures for translation, cultural adaptation, and validation of an instrument were followed, and three interviews were conducted baseline; seven to fourteen days after baseline; and at four to six months. The questionnaire was analyzed (with 95% confidence interval) for reliability by internal consistency (Cronbach's alpha); testretest reproducibility (intraclass correlation coefficient); responsiveness and validity.

Results:

terms of the original questionnaire were replaced to guarantee cultural and semantic equivalence. Validity was demonstrated by expressive correlations between the RosaQoL domains and by significance in the Jonckheere-Terpstra test (p≤0.05) between the scores of the RosaQoL domains and the participants' self-perception in relation to the disease. Reliability was acceptable; alpha coefficient ranged from 0.923 to 0.916 in the first and second applications of the RosaQoL, respectively, and the Intraclass Correlation Coefficient (ICC) ranged from 0.671 to 0.863 in the seven- to fourteen-day period. Responsiveness, measured by grouping participants into three categories based on self-perception of rosacea (better, worse or unchanged), was found for the "better" response group (p≤0.05). Study

limitations:

small sample; limited variety of screening sources.

Conclusions:

RosaQoL-BR (Brazil) was demonstrated as a reliable, valid and responsive questionnaire, with limitations, for individuals with any subtype of rosacea.
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Texto completo: 1 Coleções: 01-internacional Base de dados: LILACS Assunto principal: Qualidade de Vida / Rosácea Tipo de estudo: Qualitative_research Aspecto: Patient_preference Limite: Adolescent / Adult / Aged / Female / Humans / Male País/Região como assunto: America do sul / Brasil Idioma: En Revista: An. bras. dermatol Assunto da revista: DERMATOLOGIA Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Brasil País de publicação: Brasil
Texto completo
Adicionar na Minha BVS
Imprimir
XML
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: LILACS Assunto principal: Qualidade de Vida / Rosácea Tipo de estudo: Qualitative_research Aspecto: Patient_preference Limite: Adolescent / Adult / Aged / Female / Humans / Male País/Região como assunto: America do sul / Brasil Idioma: En Revista: An. bras. dermatol Assunto da revista: DERMATOLOGIA Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Brasil País de publicação: Brasil