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Randomised controlled pilot trial of the EndoSMS supportive text message intervention for individuals with endometriosis: Feasibility and acceptability results.
Sherman, Kerry A; Pehlivan, Melissa J; Pereira, Chantelle; Hawkey, Alex; Singleton, Anna C; Redfern, Julie; Armour, Mike; Duckworth, Tanya; Ciccia, Donna; Dear, Blake; Cooper, Michael.
Afiliación
  • Sherman KA; Lifespan Health and Wellbeing Research Centre, Macquarie University, Sydney, Australia; School of Psychological Sciences, Macquarie University, Sydney, Australia. Electronic address: kerry.sherman@mq.edu.au.
  • Pehlivan MJ; Lifespan Health and Wellbeing Research Centre, Macquarie University, Sydney, Australia; School of Psychological Sciences, Macquarie University, Sydney, Australia.
  • Pereira C; School of Psychological Sciences, Macquarie University, Sydney, Australia.
  • Hawkey A; Translational Health Research Institute (THRI), Western Sydney University, Sydney, Australia.
  • Singleton AC; School of Health Sciences, Faculty of Medicine and Health, University of Sydney, New South Wales, Australia.
  • Redfern J; Institute for Evidence-Based Healthcare, Bond University, Robina, Australia.
  • Armour M; Translational Health Research Institute (THRI), Western Sydney University, Sydney, Australia; NICM Health Research Institute, Western Sydney University, Sydney, Australia.
  • Duckworth T; School of Health Sciences, Faculty of Medicine and Health, University of Sydney, New South Wales, Australia; School of Biomedicine, Faculty of Health and Medical Sciences, University of Adelaide, Australia.
  • Ciccia D; Translational Health Research Institute (THRI), Western Sydney University, Sydney, Australia.
  • Dear B; Lifespan Health and Wellbeing Research Centre, Macquarie University, Sydney, Australia; School of Psychological Sciences, Macquarie University, Sydney, Australia; eCentreClinic, School of Psychological Sciences, Macquarie University, Sydney, Australia.
  • Cooper M; Royal Prince Alfred Hospital, Sydney, Australia.
J Psychosom Res ; 187: 111929, 2024 Sep 12.
Article en En | MEDLINE | ID: mdl-39305835
ABSTRACT

OBJECTIVE:

Diminished quality of life, inadequate support and social isolation are commonly experienced by individuals living with the chronic pain condition, endometriosis. We aimed to determine the feasibility and acceptability of EndoSMS, a psychologically-focused text message intervention designed to support individuals living with endometriosis.

METHODS:

As part of a two-arm parallel pilot randomised controlled trial with waitlist control, the feasibility and acceptability of a brief (3-month) version of EndoSMS was assessed using a mixed methods approach. Feasibility data (uptake, attrition, text message delivery analytics) and user acceptability (via self-report survey items and written feedback) were assessed. Qualitative data were thematically analysed using the template approach. Primary trial outcomes are not reported in this paper.

RESULTS:

Feasibility was indicated by high conversion rate (99.1 %), low attrition (14.2 %), few opt-outs (0.02 %) and a high message delivery rate (99.8 %). Most intervention participants indicated user acceptability (mean = 4.02/5) across self-report questions. Most rated the length of the program (65.5 %), and the number (80.9 %) and language (94.5 %) of the text messages to be 'just right'. Thematic analysis created four themes A shared "battle" Feeling less isolated and alone; "Be kind to yourself" A focus on self-care, self-compassion and active coping; Keeping endometriosis at the forefront Helpful or stressful?; Mixed perceptions surrounding the provision of general endometriosis information; and, Tailoring of text messages.

CONCLUSION:

EndoSMS supportive text message program was feasible and acceptable for individuals with endometriosis. Future developments of the program should consider greater tailoring of content to user needs. TRIAL REGISTRATION Australian New Zealand Clinical Trials Registry (ACTRN12621001642875).
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Psychosom Res Año: 2024 Tipo del documento: Article Pais de publicación: Reino Unido
Texto completo
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Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Psychosom Res Año: 2024 Tipo del documento: Article Pais de publicación: Reino Unido