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Why so Blue? (Or Should I Say Red?) Recognizing the Emotional Impact of Psoriasis on Patients and Family Members: A Qualitative Study.
Snyder, Ashley M; Taliercio, Vanina L; Rich, Bianca E; Brandenberger, Adelheid U; Webber, Lisa B; Beshay, Abram P; Biber, Joshua E; Hess, Rachel; Rhoads, Jamie Lw; Secrest, Aaron M.
Afiliación
  • Snyder AM; Department of Dermatology, University of Utah, Salt Lake City, UT, USA.
  • Taliercio VL; Department of Population Health Sciences, University of Utah, Salt Lake City, UT, USA.
  • Rich BE; Department of Dermatology, University of Utah, Salt Lake City, UT, USA.
  • Brandenberger AU; School of Medicine, University of Utah, Salt Lake City, UT, USA.
  • Webber LB; School of Medicine, University of Utah, Salt Lake City, UT, USA.
  • Beshay AP; Department of Dermatology, University of Utah, Salt Lake City, UT, USA.
  • Biber JE; Department of Dermatology, University of Utah, Salt Lake City, UT, USA.
  • Hess R; Department of Population Health Sciences, University of Utah, Salt Lake City, UT, USA.
  • Rhoads JL; Department of Population Health Sciences, University of Utah, Salt Lake City, UT, USA.
  • Secrest AM; Department of Internal Medicine, University of Utah, Salt Lake City, UT, USA.
J Psoriasis Psoriatic Arthritis ; 7(2): 60-66, 2022 Apr.
Article en En | MEDLINE | ID: mdl-39296824
ABSTRACT

Background:

Psoriasis is a chronic skin condition with significant effects on quality of life, including impacts on emotional health. However, these experiences are not always addressed in clinic visits, despite their potential for significant effects on daily life. This study is part of a larger project on the effects of psoriasis on quality of life. The current information was analyzed separately because the amount of information on emotional impacts mentioned by participants was so significant that it warranted a separate analysis to thoroughly assess these experiences.

Objective:

To describe emotional consequences of psoriasis for patients and their family members.

Methods:

This project was conducted at an academic medical center in Utah. Experiences were discussed in interviews and focus groups with 25 patients and 11 family members. Thematic analysis was used to determine themes and subthemes.

Results:

This study sheds light on the damaging effects of psoriasis on emotional well-being, illustrating the challenges patients face from internal conflict, consequences for family members trying to cope with psoriasis in a loved one, and judgment from others who do not understand psoriasis and its challenges.

Conclusion:

Living with psoriasis leads to emotional consequences that may be left unaddressed in clinic visits, yet these experiences contribute significantly to quality of life. The stories told through this study can help clinicians understand how to identify and address emotional concerns to improve care for psoriasis patients and, as a result, improve quality of life for both patients and their families.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Psoriasis Psoriatic Arthritis Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Psoriasis Psoriatic Arthritis Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos