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The psychometric properties of the Quality of Life in Neurological Disorders (Neuro-QoL) measurement system in neurorehabilitation populations: a systematic review.
Ataman, Rebecca; Alhasani, Rehab; Auneau-Enjalbert, Line; Quigley, Adria; Michael, Henry Ukachukwu; Ahmed, Sara.
Afiliación
  • Ataman R; School of Physical and Occupational Therapy, McGill University, Montréal, Québec, Canada.
  • Alhasani R; Centre for Interdisciplinary Research in Rehabilitation of Greater Montréal, Montréal, Québec, Canada.
  • Auneau-Enjalbert L; Clinical Institutes and Quality Programs, Ontario Health, Toronto, Ontario, Canada.
  • Quigley A; Department of Rehabilitation Sciences, College of Health and Rehabilitation Sciences, Princess Nourah bint Abdulrahman University, Riyadh, Saudi Arabia.
  • Michael HU; School of Physical and Occupational Therapy, McGill University, Montréal, Québec, Canada.
  • Ahmed S; Centre for Interdisciplinary Research in Rehabilitation of Greater Montréal, Montréal, Québec, Canada.
J Patient Rep Outcomes ; 8(1): 106, 2024 Sep 18.
Article en En | MEDLINE | ID: mdl-39292414
ABSTRACT

OBJECTIVE:

To systematically review the literature of existing evidence on the measurement properties of the Quality of Life in Neurological Disorders (Neuro-QoL) measurement system among neurorehabilitation populations. DATA SOURCES The Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) guided this systematic review in which we searched nine electronic databases and registries, and hand-searched reference lists of included articles. STUDY SELECTION Two independent reviewers screened selected articles and extracted data from 28 included studies. DATA EXTRACTION COSMIN's approach guided extraction and synthesizing measurement properties evidence (insufficient, sufficient), and the modified GRADE approach guided synthesizing evidence quality (very-low, low, moderate, high) by diagnosis. DATA

SYNTHESIS:

Neuro-QoL has sufficient measurement properties when used by individuals with Huntington's disease, Multiple Sclerosis, Parkinson's disease, stroke, lupus, cognitive decline, and amyotrophic lateral sclerosis. The strongest evidence is for the first four conditions, where test-retest reliability, construct validity, and responsiveness are nearly always sufficient (GRADE moderate-high). Structural validity is assessed only in multiple sclerosis and stroke but is often insufficient (GRADE moderate-high). Criterion validity is sufficient in some stroke and Huntington's disease domains (GRADE high). Item response theory analyses were reported for some stroke domains only. There is limited, mixed evidence for responsiveness and measurement error (GRADE moderate-high), and no cross-cultural validity evidence

CONCLUSIONS:

Neuro-QoL domains can describe and evaluate patients with Huntington's disease, multiple sclerosis, Parkinson's disease, and stroke, but predictive validity evidence would be beneficial. In the other conditions captured in this review, a limited number of Neuro-QoL domains have evidence for descriptive use only. For these conditions, further evidence of structural validity, measurement error, cross-cultural validity and predictive validity would enhance the use and interpretation of Neuro-QoL.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Psicometría / Calidad de Vida / Rehabilitación Neurológica / Enfermedades del Sistema Nervioso Límite: Humans Idioma: En Revista: J Patient Rep Outcomes Año: 2024 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Alemania
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Psicometría / Calidad de Vida / Rehabilitación Neurológica / Enfermedades del Sistema Nervioso Límite: Humans Idioma: En Revista: J Patient Rep Outcomes Año: 2024 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Alemania