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Pressure ulcer prevention for people with long-term neurological conditions (LTNCs) who self-manage care and live at home.
Muir, Delia; McLarty, Laura; Drinkwater, Jessica; Bennett, Carole; Birks, Yvonne; Broadway-Parkinson, Andrea; Cooksey, Vanessa; Gleeson, Phil; Holland, Christy; Ledger, Lisa; Lowe, Daniella-Jade; McGoverin, Andrea; Nixon, Jane; Perry, Tanya; Sandoz, Heidi; Rawson, Brian; Rawson, Yvonne; Stubbs, Nikki; Walker, Kay; Whitaker, Helen; Coleman, Susanne.
Afiliación
  • Muir D; Leeds Institute of Clinical Trials Research, University of Leeds, Leeds, LS2 9JT, UK. Electronic address: D.P.Muir@leeds.ac.uk.
  • McLarty L; Leeds Institute of Clinical Trials Research, University of Leeds, Leeds, LS2 9JT, UK.
  • Drinkwater J; Centre for Primary Care and Health Service Research, The University of Manchester, UK.
  • Bennett C; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Birks Y; School for Business and Society, University of York, UK.
  • Broadway-Parkinson A; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Cooksey V; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Gleeson P; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Holland C; Leeds Community Healthcare Trust, UK.
  • Ledger L; NIHR Coordinating Centre, 21 Queen Street, Leeds, LS1 2TW, UK.
  • Lowe DJ; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • McGoverin A; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Nixon J; Institute of Health Sciences, University, of Leeds, Leeds, LS2 9JT, UK.
  • Perry T; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Sandoz H; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Rawson B; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Rawson Y; Tissue Viability CNS, Hertfordshire Community NHS Trust, UK.
  • Stubbs N; Independent Tissue Viability Nurse, UK.
  • Walker K; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Whitaker H; Pressure Ulcer at Home Co-operative Inquiry Group, UK.
  • Coleman S; Leeds Institute of Clinical Trials Research, University of Leeds, Leeds, LS2 9JT, UK. Electronic address: s.b.coleman@leeds.ac.uk.
J Tissue Viability ; 2024 Sep 02.
Article en En | MEDLINE | ID: mdl-39289092
ABSTRACT

AIM:

To develop a Theory of Change (ToC) pathway to facilitate the development of a multi-component intervention package supporting pressure Ulcer (PU) risk identification and management, in partnership with people with Long Term Neurological Conditions (LTNC) who self-manage care and live at home, their informal carers and PAs.

METHODS:

A participatory approach, with extensive input from those whose lives are the focus of the research, was used throughout the 4 interlinked work packages (WP) Iterative data analysis was undertaken with emerging findings from each WP informing subsequent stages of the study.

FINDINGS:

Overall, 74 participants contributed across the 4 WPs, incorporating 31 Service Users (SU), 8 carers, 9 Personal Assistants (PAs) and 26 professional stakeholders. We identified 8 key themes related to PU prevention, incorporating, learning, safe routines, third sector and peer support, navigating complex systems, adapting and reacting to change, perceptions of risk, risk negotiation and supporting roles. The findings indicate systemic and professional barriers which hamper people's ability to self-care and seek help.

CONCLUSIONS:

The study highlights the complexities and impact of managing PU prevention activities at home for people with LTNC and areas of learning for health professionals and systems. By understanding these complexities we developed a systems map, identified resource requirements and illustrated a Theory of Change (ToC) pathway, to underpin future work to develop and user test an interactive, multi-component intervention.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Tissue Viability Asunto de la revista: ENFERMAGEM / FISIOLOGIA Año: 2024 Tipo del documento: Article Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Tissue Viability Asunto de la revista: ENFERMAGEM / FISIOLOGIA Año: 2024 Tipo del documento: Article Pais de publicación: Reino Unido