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"When selling anything to an audience, visible publicity is key:" experiences, barriers, and enablers to participate in a COVID-19 study in Malawi.
Mdala, Vanessa; Nyirenda, Deborah; Mpinganjira, Samuel; Mwapasa, Victor; Nyondo-Mipando, Alinane Linda.
Afiliación
  • Mdala V; Department of Epidemiology and Statistics, School of Global and Public Health, Kamuzu University of Health Sciences, Blantyre, Malawi.
  • Nyirenda D; Malawi-Liverpool-Wellcome Trust Clinical Research Programme, Blantyre, Malawi.
  • Mpinganjira S; Department of Health Systems and Policy, School of Global and Public Health, Kamuzu University of Health Sciences, Blantyre, Malawi.
  • Mwapasa V; Department of Epidemiology and Statistics, School of Global and Public Health, Kamuzu University of Health Sciences, Blantyre, Malawi.
  • Nyondo-Mipando AL; Malawi-Liverpool-Wellcome Trust Clinical Research Programme, Blantyre, Malawi. lmipando@kuhes.ac.mw.
BMC Med Res Methodol ; 24(1): 207, 2024 Sep 16.
Article en En | MEDLINE | ID: mdl-39285321
ABSTRACT

BACKGROUND:

Many studies in infectious diseases struggle to recruit participants. The SARS-CoV-2 infection, transmission dynamics, and household impact in Malawi (SCATHIM) study reported a refusal rate of 57.2%. Adequate publicity can lead to more people participating in studies. This study explored the reasons for participating in the SCATHIM study.

METHODS:

A descriptive qualitative study informed by the theory of reasoned action was conducted in Blantyre between January 2022 and March 2022 to assess factors that influence participation in a COVID-19 study among 10 index cases, 10 caregivers, 10 study decliners, and 5 research staff. The data were collected via in-depth interview guides, audio recorded, transcribed, managed via NVIVO and analysed via a thematic approach.

RESULTS:

The factors that motivated participation in the study included one's knowledge of COVID-19; potential access to medical services, including free COVID-19 tests for members of the household; financial reimbursements; and the ability to contribute scientific knowledge. The barriers to participation included minimal publicity of the study amidst a novel condition, perceived stigma and discrimination, perceived invasion of privacy, discomfort with the testing procedures, and suboptimal financial reimbursements.

CONCLUSION:

Effective publicity and outreach strategies have the potential to decrease refusal rates in study participation, especially if a condition is novel. Studies on infectious diseases should address stigma and discrimination to promote participation and ensure participant safety.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Investigación Cualitativa / COVID-19 Límite: Adult / Female / Humans / Male / Middle aged País/Región como asunto: Africa Idioma: En Revista: BMC Med Res Methodol Asunto de la revista: MEDICINA Año: 2024 Tipo del documento: Article País de afiliación: Malawi Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Investigación Cualitativa / COVID-19 Límite: Adult / Female / Humans / Male / Middle aged País/Región como asunto: Africa Idioma: En Revista: BMC Med Res Methodol Asunto de la revista: MEDICINA Año: 2024 Tipo del documento: Article País de afiliación: Malawi Pais de publicación: Reino Unido