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Acceptability and potential benefit of a self-compassion intervention for people living with amyotrophic lateral sclerosis: a mixed methods pilot study.
Sommers-Spijkerman, Marion; Zwarts-Engelbert, Aimée; Kruitwagen-Van Reenen, Esther; Van Eijk, Ruben P A; Visser-Meily, Johanna M A; Heijmans, Emmy; Austin, Judith; Drossaert, Constance; Bohlmeijer, Ernst; Beelen, Anita.
Afiliación
  • Sommers-Spijkerman M; Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
  • Zwarts-Engelbert A; Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
  • Kruitwagen-Van Reenen E; Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
  • Van Eijk RPA; Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
  • Visser-Meily JMA; Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
  • Heijmans E; Department of Neurology, UMC Utrecht Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
  • Austin J; Biostatistics & Research Support, Julius Centre for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands, and.
  • Drossaert C; Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
  • Bohlmeijer E; Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
  • Beelen A; Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
Amyotroph Lateral Scler Frontotemporal Degener ; : 1-11, 2024 Sep 11.
Article en En | MEDLINE | ID: mdl-39258586
ABSTRACT

Objective:

This proof-of-concept study aimed to explore the acceptability and potential benefit of a self-guided online self-compassion intervention to aid resilient coping and reduce emotional distress among patients and caregivers living with ALS.

Methods:

A single-arm pilot study was conducted in 20 adults living with ALS either as a patient or as a caregiver. Acceptability was examined using questionnaires (n = 20) and semi-structured interviews (n = 9). Potential benefit was assessed as changes in self-compassion, self-criticism and emotional distress, determined using psychological questionnaires at 3 and 6 weeks. Questionnaires were analyzed using linear mixed-effects models and interview data using inductive thematic analysis.

Results:

Out of 20 participants who started the intervention, 16 completed the study (80%). The majority of study completers (12/16) were satisfied with the intervention, but the data suggest room for improvement in terms of personalization. Qualitative data revealed multiple psychological benefits of using the intervention, including self-kindness, emotional self-awareness and savoring. Although not statistically significant, quantitative data showed positive trends with increased self-compassion (mean difference 2.07; 95% CI -.5.76 - 1.63) and reduced self-criticism (mean difference -2.62; 95% CI -.1.97 - 7.23) and emotional distress (mean difference -2.49; 95% CI -.51 - 5.50) at week 6 compared to baseline.

Conclusions:

The findings suggest that a self-compassion intervention is acceptable to people living with ALS, but its beneficial effects and the mechanisms involved have yet to be established in larger and more diverse samples, using controlled designs.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Amyotroph Lateral Scler Frontotemporal Degener Año: 2024 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Amyotroph Lateral Scler Frontotemporal Degener Año: 2024 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Reino Unido