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A self-management package for pulmonary fibrosis: A feasibility study.
Lee, Joanna Y T; Tikellis, Gabriella; Hoffman, Mariana; Mellerick, Christie R; Symons, Karen; Bondarenko, Janet; Khor, Yet H; Glaspole, Ian; Holland, Anne E.
Afiliación
  • Lee JYT; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, Australia.
  • Tikellis G; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, Australia.
  • Hoffman M; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, Australia.
  • Mellerick CR; Institute for Breathing and Sleep, Melbourne, Australia.
  • Symons K; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, Australia.
  • Bondarenko J; Department of Respiratory and Sleep Medicine, Alfred Health, Melbourne, Australia.
  • Khor YH; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, Australia.
  • Glaspole I; Department of Physiotherapy, Alfred Health, Melbourne, Australia.
  • Holland AE; Respiratory Research@Alfred, School of Translational Medicine, Monash University, Melbourne, Australia.
PEC Innov ; 5: 100328, 2024 Dec 15.
Article en En | MEDLINE | ID: mdl-39247403
ABSTRACT
Background and

objective:

There is currently no self-management package designed to meet the needs of people with pulmonary fibrosis (PF). This study evaluated the feasibility and acceptability of a PF-specific self-management package.

Methods:

Adults with PF were randomly allocated (11) to either receive the self-management package with healthcare professional (HCP) support or standardised PF information. Primary outcomes were feasibility and acceptability of the intervention. Secondary outcomes included health-related quality of life, self-efficacy, breathlessness, daily steps, use of PF-related treatments, and healthcare utilisation. Participants' experiences of using the package were explored using qualitative interviews.

Results:

Thirty participants were included. Recruitment rate was 91% and 100% of those recruited were randomised. Eighty-seven percent of participants who received the package read ≥1 module and set a goal. Secondary outcomes were feasible to collect with high assessment completion rates (87%). Most participants reported the package was easy to use and enhanced knowledge, but suggested some improvements, while HCP support was highly valued.

Conclusion:

A PF-specific self-management package was feasible to deliver and requires further testing in a trial powered to detect changes in clinical outcomes. Innovation This is the first self-management package designed specifically for people with PF, informed by patient experience and expert consensus.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: PEC Innov Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Países Bajos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: PEC Innov Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Países Bajos