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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Impact on Quality of Life (QoL) of Persons with ME/CFS.
Muirhead, Nina L; Vyas, Jui; Ephgrave, Rachel; Singh, Ravinder; Finlay, Andrew Y.
Afiliación
  • Muirhead NL; Department of Dermatology, Buckinghamshire Healthcare NHS Trust, Amersham HP7 0JD, UK.
  • Vyas J; Centre for Medical Education, School of Medicine, Cardiff University, Cardiff CF14 4YS, UK.
  • Ephgrave R; Patient Research Partner, Gloucestershire, UK.
  • Singh R; Medical Research Council, Polaris House, Swindon SN2 IFL, UK.
  • Finlay AY; Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff CF14 4YS, UK.
Medicina (Kaunas) ; 60(8)2024 Jul 27.
Article en En | MEDLINE | ID: mdl-39202496
ABSTRACT
Background and

Objectives:

We previously reported on the impact of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on the QoL of persons with ME/CFS and their family members. Here, we present the findings of the impact on the QoL of individuals with ME/CFS whose family members did not participate in the survey. Materials and

Methods:

A prospective multinational online survey was disseminated via patient charities, support groups and social media. Persons with ME/CFS completed the EuroQoL questionnaire (EQ-5D-3L).

Results:

Data were analysed from 876 participants from 26 countries who reported a health care professional diagnosis of ME/CFS. In total, 742 participants identified as female, 124 male and 10 preferred not to say. The mean age of the participants was 47 years (range 18-82), and the mean time to diagnosis was 14 years. The mean overall health status on a visual analogue scale for people with ME/CFS was 36.4 (100 = best health). People with ME/CFS were most often affected by inability to perform usual activities (n = 852, 97%), followed by pain (n = 809, 92%), impaired mobility (n = 724, 83%), difficulty in self-care (n = 561, 64%) and least often affected by anxiety and depression (n = 540, 62%).

Conclusions:

The QoL of people with ME/CFS is significantly affected globally. There was no significant difference in quality of life compared with previously published data on those with ME/CFS who did have a family member complete the family member quality of life questionnaire (FROM16). Contrary to popular misconception, anxiety and depression are the least often affected areas in persons with ME/CFS who are most impacted by their inability to perform usual activities.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Síndrome de Fatiga Crónica Límite: Adolescent / Adult / Aged / Aged80 / Female / Humans / Male / Middle aged Idioma: En Revista: Medicina (Kaunas) Asunto de la revista: MEDICINA Año: 2024 Tipo del documento: Article País de afiliación: Reino Unido Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Síndrome de Fatiga Crónica Límite: Adolescent / Adult / Aged / Aged80 / Female / Humans / Male / Middle aged Idioma: En Revista: Medicina (Kaunas) Asunto de la revista: MEDICINA Año: 2024 Tipo del documento: Article País de afiliación: Reino Unido Pais de publicación: Suiza