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Addressing Statistical Power and Increasing Diversity in Hospice Research: Electronic Medical Record Participant Identification Compared to Nurse Referral Approaches to Recruitment.
Oliver, Debra Parker; Ersek, Mary; White, Patrick; Jorgenson, Lucas; Pitzer, Kyle; Rolbiecki, Abigail; Mayahara, Masako; Washington, Karla; Demiris, George.
Afiliación
  • Oliver DP; Division of Palliative Medicine (D.P.O.), Department of Medicine, Washington University in St. Louis, Goldfarb School of Nursing, St. Louis, Missouri, United States. Electronic address: oliverd@wustl.edu.
  • Ersek M; Corporal Michael J. Crescenz VA Medical Center (M.E.), University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, United States.
  • White P; Division of Palliative Medicine (P.W., L.J., K.P.), Department of Medicine, Washington University in St. Louis, St. Louis, Missouri, United States.
  • Jorgenson L; Division of Palliative Medicine (P.W., L.J., K.P.), Department of Medicine, Washington University in St. Louis, St. Louis, Missouri, United States.
  • Pitzer K; Division of Palliative Medicine (P.W., L.J., K.P.), Department of Medicine, Washington University in St. Louis, St. Louis, Missouri, United States.
  • Rolbiecki A; Department of Family Medicine (A.R.), University of Colorado, Boulder, Colorado, United States.
  • Mayahara M; Goldfarb School of Nursing (M.M.), Barnes Jewish College of Nursing, St Louis, Missouri, United States.
  • Washington K; Division of Palliative Medicine (K.W.), Department of Medicine, Washington University in St. Louis, St Louis, Missouri, United States.
  • Demiris G; Department of Biobehavioral and Health Science (G.D.), School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania, United States; Department of Biostatistics (G.D.), Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philidelphia, Pennsylvania, Unit
J Pain Symptom Manage ; 68(6): 594-602, 2024 Dec.
Article en En | MEDLINE | ID: mdl-39197694
ABSTRACT
CONTEXT Recruitment of targeted samples into hospice clinical trials is often challenging. While electronic medical records (EMR) are commonly used in hospital-based research, it is uncommon in hospice research. The community setting and the variability in hospices and their medical record creates unique challenges.

OBJECTIVES:

This paper compares recruitment in two hospice randomized controlled trials, each of which had a group recruited by using the EMR identification and a group recruited by nurse referral. We sought to answer three questions 1) What is the impact of using the EMR to identify hospice participants for clinical research? 2) How do the referral count and consent rate (referrals that ultimately result in verbal informed consent to participate in research) differ between hospice agencies using an EMR participant identification approach compared to those using a nurse referral approach? and 3) What are the challenges associated with using the EMR to identify potential research participants?

METHOD:

Recruitment data from two hospice clinical trials was combined into a new database. Data from hospice nurse referral agencies was compared with data from those agencies who participated in EMR-identified referrals.

RESULTS:

The EMR identification process was feasible and efficient, resulting in more referrals and more consented participants than the nurse referral method. Of particular interest is that 8% more black caregivers were recruited using the EMR identification process than the nurse referral.

CONCLUSIONS:

The EMR-identified recruitment process is the recommended method in hospice research.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Derivación y Consulta / Cuidados Paliativos al Final de la Vida / Selección de Paciente / Registros Electrónicos de Salud Límite: Aged / Female / Humans / Male Idioma: En Revista: J Pain Symptom Manage Asunto de la revista: NEUROLOGIA / PSICOFISIOLOGIA / TERAPEUTICA Año: 2024 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Derivación y Consulta / Cuidados Paliativos al Final de la Vida / Selección de Paciente / Registros Electrónicos de Salud Límite: Aged / Female / Humans / Male Idioma: En Revista: J Pain Symptom Manage Asunto de la revista: NEUROLOGIA / PSICOFISIOLOGIA / TERAPEUTICA Año: 2024 Tipo del documento: Article Pais de publicación: Estados Unidos