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Impact of race and socioeconomic deprivation on clinical outcomes and healthcare utilization in pediatric multiple sclerosis.
Poisson, Kelsey E; Cofield, Stacey S; Ness, Jayne M.
Afiliación
  • Poisson KE; Department of Pediatrics, Division of Neurology, Nationwide Children's Hospital, Columbus, OH, USA.
  • Cofield SS; Department of Biostatistics, University of Alabama at Birmingham, Birmingham, AL, USA.
  • Ness JM; Department of Pediatrics, Division of Neurology, Children's of Alabama, Birmingham, AL, USA.
Mult Scler J Exp Transl Clin ; 10(3): 20552173241274586, 2024.
Article en En | MEDLINE | ID: mdl-39193072
ABSTRACT

Background:

Health disparities in adult-onset multiple sclerosis have been identified in the Black/African American (AA) population. A higher relapse rate has been suggested in Black/AA patients with pediatric-onset MS (POMS), but little work explores healthcare utilization and social determinants of health (SDOH).

Objective:

To evaluate racial, ethnic, and socioeconomic disparities in POMS outcomes.

Methods:

Retrospective chart review identified 31 eligible patients diagnosed with POMS at Children's of Alabama between 2013 and 2023. Demographics, outcomes, and healthcare utilization over 2 years from diagnosis were collected. Patient addresses were connected to SDOH measures from the US Census. Bivariate analysis was performed using Fisher's Exact Test, Wilcoxin Test, and 2-sided t-test.

Results:

Black/AA children had a higher Expanded Disability Status Scale (EDSS) at first presentation (p = 0.0276) and were more likely to initiate fingolimod vs. glatiramer acetate (p = 0.0464). Living further from Children's of Alabama was associated with a higher most recent EDSS (p = 0.0301) and fewer neurology appointments (p = 0.0167). Families living in more socioeconomically deprived census tracts had significantly more hospital admissions.

Conclusion:

Black/AA POMS patients had a more severe initial presentation and were started on higher efficacy medication. We identified disparities in EDSS and healthcare utilization based on SDOH data linked to a child's home address.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Mult Scler J Exp Transl Clin Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Mult Scler J Exp Transl Clin Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos