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The first BILGENSA Research Network workshop in Zambia: identifying research priorities, challenges and needs in genital bilharzia in Southern Africa.
Ndubani, Rhoda; Lamberti, Olimpia; Kildemoes, Anna; Hoekstra, Pytsje; Fitzpatrick, Jennifer; Kelly, Helen; Vwalika, Bellington; Randrianasolo, Bodo; Sturt, Amy; Kayuni, Seke; Choko, Augustine; Kasese, Nkatya; Kjetland, Eyrun; Nemungadi, Takalani; Mocumbi, Sibone; Samson, Anna; Ntapara, Elizabeth; Thomson, Anifrid; Danstan, Elizabeth; Chikwari, Chido Dziya; Martin, Kevin; Rabiu, Ibrahim; Terkie, Gifty; Chaima, David; Kasoka, Manuel; Joeker, Karoline; Arenholt, Louise Thomsen Schmidt; Leutscher, Peter; Stothard, Russel; Rabozakandria, Oliva; Gouvras, Anouk; Munthali, Tendai; Hameja, Grace; Kanfwa, Paul; Hikabasa, Halwindi; Ayles, Helen; Shanaube, Kwame; Bustinduy, Amaya L.
Afiliación
  • Ndubani R; Zambart School of Medicine, Lusaka, Zambia.
  • Lamberti O; Department of Clinical Research, London School of Hygiene and Tropical Medicine (LSHTM), London, UK.
  • Kildemoes A; Section for Parasitology and Aquatic Pathobiology, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark.
  • Hoekstra P; Department of Parasitology, Leiden University Medical Center, Leiden, The Netherlands.
  • Fitzpatrick J; Zambart School of Medicine, Lusaka, Zambia.
  • Kelly H; Department of Clinical Research, London School of Hygiene and Tropical Medicine (LSHTM), London, UK.
  • Vwalika B; Department of gynaecology, University of Zambia, Lusaka, Lusaka Province, Zambia.
  • Randrianasolo B; Association K'OLO VANOVA, Antananarivo, Madagascar.
  • Sturt A; Infectious Diseases Section, Veterans Affairs Healthcare System, Palo Alto, USA.
  • Kayuni S; 8. Division of Infectious Diseases and Geographic Medicine, Stanford University, Stanford, California, USA.
  • Choko A; Department of Tropical Disease Biology, Liverpool School of Tropical Medicine, Liverpool, UK.
  • Kasese N; Department of Tropical Disease Biology, Liverpool School of Tropical Medicine, Liverpool, UK.
  • Kjetland E; Zambart School of Medicine, Lusaka, Zambia.
  • Nemungadi T; Discipline of Public Health Medicine, Nelson R Mandela School of Medicine, College of Health Sciences,, University of KwaZulu-Natal, Durban, KwaZulu-Natal, South Africa.
  • Mocumbi S; Department of Infectious Diseases, Norwegian Centre for Imported and Tropical Diseases, Oslo, Norway.
  • Samson A; Discipline of Public Health Medicine, Nelson R Mandela School of Medicine, College of Health Sciences,, University of KwaZulu-Natal, Durban, KwaZulu-Natal, South Africa.
  • Ntapara E; Manhiça Health Research Centre (CISM), Maputo Central Hospital, Maputo, Mozambique.
  • Thomson A; Department of Behavioral Sciences, School of Public Health, Catholic University of Health and Allied Sciences, Mwanza, Tanzania.
  • Danstan E; Mbeya Medical Research Centre (MMRC), National Institute of Medical Research, Mwanza, Tanzania.
  • Chikwari CD; Mbeya Medical Research Centre (MMRC), National Institute of Medical Research, Mwanza, Tanzania.
  • Martin K; Biomedical Research and Training Institute, Harare, Harare Province, Zimbabwe.
  • Rabiu I; Biomedical Research and Training Institute, Harare, Harare Province, Zimbabwe.
  • Terkie G; The Centre for Sexual Health and HIV/AIDS Research Zimbabwe, Harare, Zimbabwe.
  • Chaima D; Department of Clinical Research, London School of Hygiene and Tropical Medicine (LSHTM), London, UK.
  • Kasoka M; Biomedical Research and Training Institute, Harare, Harare Province, Zimbabwe.
  • Joeker K; Department of Global Health and Infection, Brighton and Sussex Medical School, Brighton, UK.
  • Arenholt LTS; Department of Community Medicine, Gombe State University, Gombe, Gombe, Nigeria.
  • Leutscher P; Department of Community Medicine, Gombe State University, Gombe, Gombe, Nigeria.
  • Stothard R; Department of Pathology, School of Medicine and Oral Health, Kamuzu University of Health Sciences, Blantyre, Malawi.
  • Rabozakandria O; Department of gynaecology, University of Zambia, Lusaka, Lusaka Province, Zambia.
  • Gouvras A; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
  • Munthali T; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
  • Hameja G; Centre for Clinical Research, North Denmark Regional Hospital, Hjoerring, Denmark.
  • Kanfwa P; Department of Obstetrics and Gynecology, North Denmark Regional Hospital, Hjoerring, Denmark.
  • Hikabasa H; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
  • Ayles H; Department of Obstetrics and Gynecology, North Denmark Regional Hospital, Hjoerring, Denmark.
  • Shanaube K; Department of Tropical Disease Biology, Liverpool School of Tropical Medicine, Liverpool, UK.
  • Bustinduy AL; Association K'OLO VANOVA, Antananarivo, Madagascar.
Wellcome Open Res ; 9: 360, 2024.
Article en En | MEDLINE | ID: mdl-39170763
ABSTRACT
Female genital schistosomiasis (FGS) and male genital schistosomiasis (MGS) are gender-specific manifestations of urogenital schistosomiasis. Morbidity is a consequence of prolonged inflammation in the human genital tract caused by the entrapped eggs of the waterborne parasite, Schistosoma (S.) haematobium. Both diseases affect the sexual and reproductive health (SRH) of millions of people globally, especially in sub-Sahara Africa (SSA). Awareness and knowledge of these diseases is largely absent among affected communities and healthcare workers in endemic countries. Accurate burden of FGS and MGS disease estimates, single and combined, are absent, mostly due to the absence of standardized methods for individual or population-based screening and diagnosis. In addition, there are disparities in country-specific FGS and MGS knowledge, research and implementation approaches, and diagnosis and treatment. There are currently no WHO guidelines to inform practice. The BILGENSA (Genital Bilharzia in Southern Africa) Research Network aimed to create a collaborative multidisciplinary network to advance clinical research of FGS and MGS across Southern African endemic countries. The workshop was held in Lusaka, Zambia over two days in November 2022. Over 150 researchers and stakeholders from different schistosomiasis endemic settings attended. Attendees identified challenges and research priorities around FGS and MGS from their respective countries. Key research themes identified across settings included 1) To increase the knowledge about the local burden of FGS and MGS; 2) To raise awareness among local communities and healthcare workers; 3) To develop effective and scalable guidelines for disease diagnosis and management; 4) To understand the effect of treatment interventions on disease progression, and 5) To integrate FGS and MGS within other existing sexual and reproductive health (SRH) services. In its first meeting, the BILGENSA Network set forth a common research agenda across S. haematobium endemic countries for the control of FGS and MGS.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Wellcome Open Res Año: 2024 Tipo del documento: Article País de afiliación: Zambia Pais de publicación: Reino Unido

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Wellcome Open Res Año: 2024 Tipo del documento: Article País de afiliación: Zambia Pais de publicación: Reino Unido