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Patients with axial spondyloarthritis reported willingness to use remote care and showed high adherence to electronic patient-reported outcome measures: an 18-month observational study.
Thomassen, Emil Eirik Kvernberg; Berg, Inger Jorid; Kristianslund, Eirik Klami; Tveter, Anne Therese; Bakland, Gunnstein; Gossec, Laure; Hakim, Sarah; Macfarlane, Gary John; de Thurah, Annette; Østerås, Nina.
Afiliación
  • Thomassen EEK; Centre for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway. emil.thomassen@diakonsyk.no.
  • Berg IJ; Faculty of Medicine, University of Oslo (UiO), Oslo, Norway. emil.thomassen@diakonsyk.no.
  • Kristianslund EK; Centre for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway.
  • Tveter AT; Centre for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway.
  • Bakland G; Centre for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway.
  • Gossec L; Department of Rehabilitation Science and Health Technology, Oslo Metropolitan University, Oslo, Norway.
  • Hakim S; Department of Rheumatology, University Hospital of North Norway, Tromsø, Norway.
  • Macfarlane GJ; Institute of Clinical Medicine, Faculty of Health Sciences, UiT The Arctic University of Tromsø, Tromsø, Norway.
  • de Thurah A; INSERM, Institut Pierre Louis d'Epidémiologie et de Santé Publique, Sorbonne Université, Paris, France.
  • Østerås N; Rheumatology Department Pitié-Salpêtrière Hospital, AP-HP, Paris, France.
Rheumatol Int ; 44(10): 2089-2098, 2024 Oct.
Article en En | MEDLINE | ID: mdl-39164589
ABSTRACT
Remote monitoring using electronic patient reported outcomes (ePROs) in axial spondyloarthritis (axSpA) may improve self-management and reduce the need for consultations. However, knowledge regarding patients' willingness to use remote care and adherence to reporting ePROs is scarce. The objective of this study was to assess axSpA patients' willingness to use remote care and adherence to reporting of ePROs. The study was part of a three-armed randomized controlled trial testing digital follow-up strategies (The ReMonit study, NCT 05031767). AxSpA patients in low disease activity were randomized to usual care, remote monitoring, or patient-initiated care. Demographics, clinical data, and patients' willingness to use remote care were collected at baseline. EPROs were reported either monthly or quarterly by the remote monitoring- and patient-initiated care group over 18 months, respectively. Adherence to reporting was calculated as number of ePROs completed divided by the total number requested. Mixed model logistic regression was utilized to assess factors associated with adherence to reporting of ePROs. In total 242 patients (median age 43 years, 75% males) were included. The majority (96%) reported high willingness to use remote care. Adherence to reporting ePROs remained high over 18 months by remote monitoring and patient-initiated care groups [median (IQR) 88% (77-100) vs. 83% (66-100)]. No patient characteristics were significantly associated with adherence to reporting of ePROs. The high degree of willingness and adherence to reporting ePROs over time indicates that the majority of axSpA patients with low disease activity are motivated to use remote care.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Telemedicina / Medición de Resultados Informados por el Paciente / Espondiloartritis Axial Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: Rheumatol Int Año: 2024 Tipo del documento: Article País de afiliación: Noruega Pais de publicación: Alemania
Texto completo
Añadir a Mi BVS
Imprimir
XML
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Telemedicina / Medición de Resultados Informados por el Paciente / Espondiloartritis Axial Límite: Adult / Female / Humans / Male / Middle aged Idioma: En Revista: Rheumatol Int Año: 2024 Tipo del documento: Article País de afiliación: Noruega Pais de publicación: Alemania