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Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus.
Guardino, Katrina; Gaerlan, Malaya; Pinotti, Caitlan S; Burnett, Kimberly R; Kofoed, Deborah; Schanberg, Laura Eve; Hightow-Weidman, Lisa B; Randell, Rachel L.
Afiliación
  • Guardino K; Duke University School of Medicine, Durham, North Carolina, USA.
  • Gaerlan M; Stanford University, Stanford, California, USA.
  • Pinotti CS; Duke University School of Medicine, Durham, North Carolina, USA.
  • Burnett KR; Grand Canyon University, Phoenix, Arizona, USA.
  • Kofoed D; Patient author, Charlotte, North Carolina, USA.
  • Schanberg LE; Pediatrics, Duke University, Durham, North Carolina, USA.
  • Hightow-Weidman LB; Florida State University, Tallahassee, Florida, USA.
  • Randell RL; Duke University School of Medicine, Durham, North Carolina, USA rachel.randell@duke.edu.
Lupus Sci Med ; 11(2)2024 Jul 31.
Article en En | MEDLINE | ID: mdl-39089735
ABSTRACT
Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group's discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cuidadores / Telemedicina / Aplicaciones Móviles / Lupus Eritematoso Sistémico Límite: Child / Humans Idioma: En Revista: Lupus Sci Med Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Cuidadores / Telemedicina / Aplicaciones Móviles / Lupus Eritematoso Sistémico Límite: Child / Humans Idioma: En Revista: Lupus Sci Med Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido