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Autistic and autism community perspectives on infant and family support in the first two years of life: Findings from a community consultation survey.
Bent, Catherine A; Aulich, Alexandra; Constantine, Christos; Fidock, Esther; Dwyer, Patrick; Green, Cherie; Smith, Jodie; Gurba, Ava N; Harrington, Lucas T; Gore, Katherine E; Rabba, Aspasia Stacey; Ayton, Lauren N; Fordyce, Kathryn; Green, Jonathan; Jellett, Rachel; Kennedy, Lyndel J; MacDuffie, Katherine E; Meera, Shoba S; Watson, Linda R; Whitehouse, Andrew Jo; Hudry, Kristelle.
Afiliación
  • Bent CA; La Trobe University, Australia.
  • Aulich A; La Trobe University, Australia.
  • Constantine C; La Trobe University, Australia.
  • Fidock E; La Trobe University, Australia.
  • Dwyer P; La Trobe University, Australia.
  • Green C; University of California, Davis, USA.
  • Smith J; La Trobe University, Australia.
  • Gurba AN; La Trobe University, Australia.
  • Harrington LT; Drexel University, USA.
  • Gore KE; Stony Brook University, USA.
  • Rabba AS; University of Washington Autism Center, USA.
  • Ayton LN; La Trobe University, Australia.
  • Fordyce K; Monash University, Australia.
  • Green J; The University of Melbourne, Australia.
  • Jellett R; Playgroup Tasmania Inc., Australia.
  • Kennedy LJ; The University of Manchester, UK.
  • MacDuffie KE; Royal Manchester Children's Hospital, UK.
  • Meera SS; Swinburne University of Technology, Australia.
  • Watson LR; La Trobe University, Australia.
  • Whitehouse AJ; University of Washington, USA.
  • Hudry K; National Institute of Mental Health and Neurosciences (NIMHANS), India.
Autism ; : 13623613241262077, 2024 Jul 30.
Article en En | MEDLINE | ID: mdl-39080987
ABSTRACT
LAY ABSTRACT Most support programmes for Autistic children are available only after they are diagnosed. Research suggests that parenting supports may be helpful for parents and their infants, when provided in the first 2 years of life - before a formal diagnosis is given, but when information suggests an infant is more likely to be Autistic. However, we do not know how acceptable these types of supports might be to the Autistic and autism communities. We asked 238 Autistic and non-autistic people - some of whom were parents, and some of whom were professionals working in research, health and education - about their perspectives on very-early supports. People generally agreed that it could be acceptable to work with parents to help them understand and support their child's specific needs and unique ways of communicating. People suggested a variety of support strategies could be acceptable, including parent education, changing the environment to meet an infant's needs, and creating opportunities for infants' to make choices and exercise control. People preferred respectful and accurate language - including the term 'support' (rather than 'intervention') and 'early-in-life' (rather than 'at-risk' of autism, or 'pre-emptive' when describing developmental stage). Continuing to work with community members will help to make sure autism support programmes are relevant and helpful.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Autism Asunto de la revista: PSICOLOGIA / PSIQUIATRIA Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Autism Asunto de la revista: PSICOLOGIA / PSIQUIATRIA Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Reino Unido