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Healthcare Communication Experiences of Hispanic Caregivers of Childhood Cancer Survivors.
Ochoa-Dominguez, Carol Y; Banegas, Matthew P; Miller, Kimberly A; Orellana Garcia, Carlos; Sabater-Minarim, Daniel; Chan, Randall Y.
Afiliación
  • Ochoa-Dominguez CY; Department of Radiation Medicine and Applied Sciences, University of California San Diego, La Jolla, CA 92093, USA.
  • Banegas MP; Center for Health Equity Education and Research, University of California San Diego, La Jolla, CA 92093, USA.
  • Miller KA; Department of Radiation Medicine and Applied Sciences, University of California San Diego, La Jolla, CA 92093, USA.
  • Orellana Garcia C; Center for Health Equity Education and Research, University of California San Diego, La Jolla, CA 92093, USA.
  • Sabater-Minarim D; Department of Population and Public Health Sciences, Keck School of Medicine, University of Southern California, Los Angeles, CA 90007, USA.
  • Chan RY; Department of Dermatology, Keck School of Medicine, University of Southern California, Los Angeles, CA 90007, USA.
Healthcare (Basel) ; 12(13)2024 Jun 30.
Article en En | MEDLINE | ID: mdl-38998842
ABSTRACT

BACKGROUND:

Interpersonal communication is a crucial component of the cancer experience that can contribute to managing cancer care and improving cancer survivors' and caregivers' quality of life. Cultural and contextual factors may impact Hispanic childhood cancer survivor (CCS) and parent caregiver relationships and communication. This study sought to describe the healthcare communication experiences of Hispanic parents with CCS, families, and medical providers.

METHODS:

We conducted 15 semi-structured interviews with Hispanic caregivers from a safety-net hospital in Los Angeles County. Interviews were conducted in English and Spanish, audio-recorded and professionally transcribed, and analyzed using a thematic approach.

RESULTS:

Caregivers shared the importance and impact of medical communication when exploring the "first big talk" of the diagnosis, uncertainty about treatment, navigating multiple providers, therapeutic communication (i.e., providing emotional reassurance), and current and lingering effects of cancer. All caregivers shared "good communication" experiences, while others shared various barriers to communication, including a lack of understanding of the cancer diagnosis and caregiver experience, psychological challenges impacting communication, cultural and language differences, physical factors that limit communication, and young age of child impacting communication with caregivers.

CONCLUSIONS:

Our findings suggest that a strong interpersonal communication skill set for clinicians can contribute to managing cancer care and improving caregivers' psychological adjustment.
Palabras clave

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Healthcare (Basel) Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Suiza

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Healthcare (Basel) Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Suiza