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Disparities in cancer clinical trials information-seeking: Findings from the National Cancer Institute's Cancer Information Service.
Vanderpool, Robin C; Ng, Diane; Huang, Grace; Dwyer, Laura A; Kueppers, George.
Afiliación
  • Vanderpool RC; National Cancer Institute, Behavioral Research Program, Division of Cancer Control and Population Sciences, 9609 Medical Center Dr, Rockville, MD, USA. Electronic address: robin.vanderpool@nih.gov.
  • Ng D; Westat, 1600 Research Blvd, Rockville, MD, USA.
  • Huang G; Westat, 1600 Research Blvd, Rockville, MD, USA.
  • Dwyer LA; Cape Cox Facilities Services, 7050 Infantry Ridge Rd, Manassas, VA, USA.
  • Kueppers G; National Cancer Institute, Behavioral Research Program, Division of Cancer Control and Population Sciences, 9609 Medical Center Dr, Rockville, MD, USA.
Patient Educ Couns ; 127: 108358, 2024 Oct.
Article en En | MEDLINE | ID: mdl-38936161
ABSTRACT

OBJECTIVE:

To better understand cancer clinical trials (CCT) information-seeking, a necessary precursor to patient and provider engagement with CCT.

METHODS:

Data from the National Cancer Institute's Cancer Information Service (CIS) were used to examine CCT information-seeking patterns over a 5-year period. Descriptive and logistic regression analyses were conducted to examine characteristics of CIS inquiries and their associations with having a CCT discussion.

RESULTS:

Between September 2018 - August 2023, 117,016 CIS inquiries originated from cancer survivors, caregivers, health professionals, and the general public; 27.5 % of these inquiries included a CCT discussion (n = 32,160). Among CCT discussions, 35.5 % originated from survivors, 53.5 % from caregivers, 6.1 % from the public, and 4.9 % from health professionals. Inquiries in Spanish had lower odds of a CCT discussion (OR=.26, [.25-.28]), whereas inquiries emanating from the CIS instant messaging (OR=2.29, [2.22-2.37]) and email (OR=1.24, [1.18-1.30]) platforms were associated with higher odds of discussing CCT compared to the telephone. Individuals who were male, younger, insured, and had higher income and education had significantly higher odds of a CCT discussion while those who were non-Hispanic Black and living in rural locales had significantly lower odds.

CONCLUSIONS:

Disparities in CCT information-seeking may contribute to downstream CCT participation. PRACTICE IMPLICATIONS Quality, language-concordant health information is needed to enable equitable awareness of - and ultimately engagement in - CCT.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Ensayos Clínicos como Asunto / National Cancer Institute (U.S.) / Conducta en la Búsqueda de Información / Neoplasias Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: America do norte Idioma: En Revista: Patient Educ Couns Año: 2024 Tipo del documento: Article Pais de publicación: Irlanda
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Ensayos Clínicos como Asunto / National Cancer Institute (U.S.) / Conducta en la Búsqueda de Información / Neoplasias Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: America do norte Idioma: En Revista: Patient Educ Couns Año: 2024 Tipo del documento: Article Pais de publicación: Irlanda