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Representations of illness and treatments in patients with desmoid tumors: A thematic content analysis of a qualitative study.
Fournier, Valentyn; Vansimaeys, Camille; Le Borgne, Marie-Annick; Krieger, Anne-Emmanuelle; Flahault, Cécile.
Afiliación
  • Fournier V; Université de Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, F-59000, Lille, France. Electronic address: valentyn.fournier@univ-lille.fr.
  • Vansimaeys C; Université Paris Cité, Laboratoire de Psychopathologie et Processus de Santé, UR 4057, Boulogne Billancourt, France; Laboratoire de Psychopathologie et Processus de Changement, Université Paris Lumières, 93526, Saint-Denis, France.
  • Le Borgne MA; Université Paris Cité, Laboratoire de Psychopathologie et Processus de Santé, UR 4057, Boulogne Billancourt, France.
  • Krieger AE; Université Paris Cité, Laboratoire de Psychopathologie et Processus de Santé, UR 4057, Boulogne Billancourt, France.
  • Flahault C; Université Paris Cité, Laboratoire de Psychopathologie et Processus de Santé, UR 4057, Boulogne Billancourt, France; Service de Psychiatrie de L'adulte et Du Sujet âgé, AP-HP, Hôpital Européen George Pompidou, F-75004, Paris, France.
Eur J Oncol Nurs ; 71: 102644, 2024 Aug.
Article en En | MEDLINE | ID: mdl-38935982
ABSTRACT

PURPOSE:

Desmoid tumors are a rare and complex disease characterized by a great diversity in its forms, localizations, and prognosis. Both the disease and the treatment can have a significant impact on quality of life in patients. Given the complexity of the disease and its rarity, the literature on patients' experience with the disease scarce. The purpose of this study is to investigate illness representations and subjective experience in participants affected with desmoid tumors.

METHODS:

Telephonic semi-directive interviews were used in French patients over 18 years, diagnosed with desmoid tumor. Data were analyzed through a general inductive method to identify emergent general themes in participants' discourse.

RESULTS:

Participants (8 women, 7 men) in this study were aged between 27 and 71. The analysis revealed eight major themes relative to representations of illness and treatment, live with the illness, the impact of illness on relationships with others, the illness and medical pathways, and the identity changes caused by the illness. The two most salient themes were illness and treatment representations and life with the illness. Those themes were chosen for this study.

CONCLUSIONS:

The results provide new insights on representation of and experience with desmoid tumors in patients. It brings arguments for the necessity of development wider systematic study to explore those variables in a larger sample during all the illness pathway. Indeed, this population meets particular issues appealing for the development of a specific psychosocial support.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Fibromatosis Agresiva / Investigación Cualitativa Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Eur J Oncol Nurs Asunto de la revista: ENFERMAGEM / NEOPLASIAS Año: 2024 Tipo del documento: Article Pais de publicación: Reino Unido
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Fibromatosis Agresiva / Investigación Cualitativa Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Eur J Oncol Nurs Asunto de la revista: ENFERMAGEM / NEOPLASIAS Año: 2024 Tipo del documento: Article Pais de publicación: Reino Unido