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Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person's Care.
Salmi, Liz; Peereboom, Danielle; Dorr, David A; Graham, Leilani R; Wolff, Jennifer L; DesRoches, Catherine M.
Afiliación
  • Salmi L; Department of General Medicine, Beth Israel Deaconess Medical Center, Boston, MA, United States.
  • Peereboom D; Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States.
  • Dorr DA; Department of Medical Informatics & Clinical Epidemiology, Oregon Health & Science University, Portland, OR, United States.
  • Wolff JL; Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States.
  • DesRoches CM; Department of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States.
J Med Internet Res ; 26: e49394, 2024 Jun 27.
Article en En | MEDLINE | ID: mdl-38935963
ABSTRACT
The US health care delivery system does not systematically engage or support family or friend care partners. Meanwhile, the uptake and familiarity of portals to personal health information are increasing among patients. Technology innovations, such as shared access to the portal, use separate identity credentials to differentiate between patients and care partners. Although not well-known, or commonly used, shared access allows patients to identify who they do and do not want to be involved in their care. However, the processes for patients to grant shared access to portals are often limited or so onerous that interested patients and care partners often circumvent the process entirely. As a result, the vast majority of care partners resort to accessing portals using a patient's identity credentials-a "do-it-yourself" solution in conflict with a health systems' legal responsibility to protect patient privacy and autonomy. The personal narratives in this viewpoint (shared by permission) elaborate on quantitative studies and provide first-person snapshots of challenges faced by patients and families as they attempt to gain or grant shared access during crucial moments in their lives. As digital modalities increase patient roles in health care interactions, so does the importance of making shared access work for all stakeholders involved-patients, clinicians, and care partners. Electronic health record vendors must recognize that both patients and care partners are important users of their products, and health care organizations must acknowledge and support the critical contributions of care partners as distinct from patients.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Portales del Paciente Límite: Humans Idioma: En Revista: J Med Internet Res Asunto de la revista: INFORMATICA MEDICA Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Canadá
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Portales del Paciente Límite: Humans Idioma: En Revista: J Med Internet Res Asunto de la revista: INFORMATICA MEDICA Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Canadá