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Clinicians' Perspectives on the Telehealth Serious Illness Care Program for Older Adults With Myeloid Malignancies: Single-Arm Pilot Study.
LoCastro, Marissa; Wang, Ying; Yu, Tristan; Mortaz-Hedjri, Soroush; Mendler, Jason; Norton, Sally; Bernacki, Rachelle; Carroll, Thomas; Klepin, Heidi; Wedow, Lucy; Goonan, Sean; Erdos, Hannah; Bagnato, Brenda; Liesveld, Jane; Huselton, Eric; Kluger, Benzi; Loh, Kah Poh.
Afiliación
  • LoCastro M; School of Medicine and Dentistry, University of Rochester, Rochester, NY, United States.
  • Wang Y; Department of Epidemiology, University of Rochester Medical Center, Rochester, NY, United States.
  • Yu T; River Campus, University of Rochester, Rochester, NY, United States.
  • Mortaz-Hedjri S; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Mendler J; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Norton S; School of Nursing, University of Rochester Medical Center, Rochester, NY, United States.
  • Bernacki R; Department of Palliative Care, Harvard Medical School, Boston, MA, United States.
  • Carroll T; Divisions of General Medicine and Palliative Care, University of Rochester Medical Center, Rochester, NY, United States.
  • Klepin H; Section on Hematology and Oncology, Department of Internal Medicine, Wake Forest School of Medicine, Winston-Salem, NC, United States.
  • Wedow L; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Goonan S; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Erdos H; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Bagnato B; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Liesveld J; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Huselton E; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
  • Kluger B; Divisions of Palliative Care and Department of Neurology, University of Rochester Medical Center, Rochester, NY, United States.
  • Loh KP; Division of Hematology Oncology, Department of Medicine, James P. Wilmot Cancer Institute, Rochester, NY, United States.
JMIR Form Res ; 8: e58503, 2024 Jun 27.
Article en En | MEDLINE | ID: mdl-38935428
ABSTRACT

BACKGROUND:

Serious illness conversations may help patients avoid unwanted treatments. We previously piloted the telehealth Serious Illness Care Program (SICP) for older adults with acute myeloid leukemia and myelodysplastic syndrome.

OBJECTIVE:

In this study, we aimed to understand the experience of the telehealth SICP from the clinician's perspective.

METHODS:

We studied 10 clinicians who delivered the telehealth SICP to 20 older adults with acute myeloid leukemia or myelodysplastic syndrome. Quantitative outcomes included confidence and acceptability. Confidence was measured using a 22-item survey (range 1-7; a higher score is better). Acceptability was measured using an 11-item survey (5-point Likert scale). Hypothesis testing was performed at α=.10 (2-tailed) due to the pilot nature and small sample size. Clinicians participated in audio-recorded qualitative interviews at the end of the study to discuss their experience.

RESULTS:

A total of 8 clinicians completed the confidence measure and 7 clinicians completed the acceptability measure. We found a statistically significant increase in overall confidence (mean increase of 0.5, SD 0.6; P=.03). The largest increase in confidence was in helping families with reconciliation and goodbye (mean 1.4, SD 1.5; P=.04). The majority of clinicians agreed that the format was simple (6/7, 86%) and easy to use (6/7, 86%). Clinicians felt that the telehealth SICP was effective in understanding their patients' values about end-of-life care (7/7, 100%). A total of three qualitative themes emerged (1) the telehealth SICP deepened relationships and renewed trust; (2) each telehealth SICP visit felt unique and personal in a positive way; and (3) uninterrupted, unrushed time optimized the visit experience.

CONCLUSIONS:

The telehealth SICP increased confidence in having serious illness conversations while deepening patient-clinician relationships. TRIAL REGISTRATION ClinicalTrials.gov NCT04745676; https//www.clinicaltrials.gov/study/NCT04745676.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: JMIR Form Res Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Canadá

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: JMIR Form Res Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Canadá