The (in)visibility of fibromyalgia through its symptoms and the challenges of its diagnosis and therapy.
Rev Bras Enferm
; 77(2): e20230363, 2024.
Article
en En, Pt
| MEDLINE
| ID: mdl-38896712
ABSTRACT
OBJECTIVE:
To analyze the social representations of fibromyalgia based on its symptoms and their influences on diagnosis and therapy.METHODS:
Qualitative research with the application of the Theory of Social Representations and snowball sampling method. Semi-structured interviews were conducted with 30 adults diagnosed with fibromyalgia in the city of Rio de Janeiro, Brazil, between April 2020 and January 2021. Statistical and lexicographical analysis was performed using Alceste software.RESULTS:
Pain, as a subjective phenomenon, complicates its legitimacy, diagnosis, and therapy, enhancing suffering. Insufficient information generates judgments, stereotypes, and prejudices. FINAL CONSIDERATIONS Stigmas, prejudices, the variety and invisibility of symptoms make it difficult to objectify the disease within the Cartesian-biomedical frameworks, generating diagnostic pilgrimage, mistakes, and challenges in treatment. Such representations hinder relationships and the management of the disease. Deconstructing them is a way to better care for those with fibromyalgia. Raising awareness and spreading qualified information are important allies.
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Fibromialgia
/
Investigación Cualitativa
Límite:
Adult
/
Female
/
Humans
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Male
/
Middle aged
País/Región como asunto:
America do sul
/
Brasil
Idioma:
En
/
Pt
Revista:
Rev Bras Enferm
Año:
2024
Tipo del documento:
Article
País de afiliación:
Brasil
Pais de publicación:
Brasil