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Health-related quality of life of adult and adolescent patients living with alopecia areata in Australia.
Sinclair, Rodney; Eisman, Samantha; Lee, Carol M Y; Hitschfeld, Maureen; Witcombe, David; Pereira, Candida da Fonseca.
Afiliación
  • Sinclair R; Sinclair Dermatology, East Melbourne, Victoria, Australia.
  • Eisman S; Sinclair Dermatology, East Melbourne, Victoria, Australia.
  • Lee CMY; Pfizer Australia, Sydney, New South Wales, Australia.
  • Hitschfeld M; IQVIA Australia, Sydney, New South Wales, Australia.
  • Witcombe D; Pfizer Australia, Sydney, New South Wales, Australia.
  • Pereira CDF; Pfizer Australia, Sydney, New South Wales, Australia.
Australas J Dermatol ; 65(5): 451-461, 2024 Aug.
Article en En | MEDLINE | ID: mdl-38764404
ABSTRACT

INTRODUCTION:

To understand the experiences of adolescent and adult patients living with alopecia areata (AA) in Australia regarding symptom severity and the impact on psychosocial well-being and work/classroom productivity. MATERIALS AND

METHODS:

A cross-sectional online patient survey among adolescent and adult patients diagnosed with AA was recruited via the Australia Alopecia Areata Foundation. Patient-reported outcomes were also assessed.

RESULTS:

A total of 337 patients (49 adolescents; 288 adults), with a mean ± standard deviation age of 14.7 ± 1.55 and 38.9 ± 13.31 years for adolescents and adults, respectively, were included. In the group with extensive hair loss (Scalp Hair Assessment Patient-Reported Outcome, categories 3 + 4, n = 172), we observed higher emotional symptom and activity limitation scores (Alopecia Areata Patient Priority Outcomes, emotional symptoms adults 2.5 ± 1.03, adolescents 2.2 ± 1.15; activity

limitations:

adults 1.4 ± 1.15, adolescents 1.2 ± 0.99). Additionally, in adults, the Alopecia Areata Symptom Impact Scale global score was 4.0 ± 2.10 (symptoms subscale score 4.1 ± 1.91; interference subscale scores 3.8 ± 2.73). Hospital Anxiety and Depression Scale scores were high across participants, irrespective of hair loss extent (adults anxiety 9.2 ± 3.85, depression 6.6 ± 3.95; adolescents anxiety 9.7 ± 4.65, depression 5.2 ± 3.59). Work and classroom productivity were substantially impaired due to AA, with 70.5% of adults and 57.1% of adolescents reporting activity impairment, and overall work/classroom impairment reported at 39.2% and 44.9%, respectively.

CONCLUSIONS:

AA impacts the physical, emotional and psychosocial well-being of both adult and adolescent patients. More extensive hair loss more profoundly impacts those living with AA. Patients may benefit from patient-centred care approaches addressing the impact of hair loss on mental and emotional well-being, daily activities and work productivity.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Alopecia Areata Límite: Adolescent / Adult / Female / Humans / Male / Middle aged País/Región como asunto: Oceania Idioma: En Revista: Australas J Dermatol Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Australia
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Alopecia Areata Límite: Adolescent / Adult / Female / Humans / Male / Middle aged País/Región como asunto: Oceania Idioma: En Revista: Australas J Dermatol Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Australia