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The lived experience of mental disorders in adolescents: a bottom-up review co-designed, co-conducted and co-written by experts by experience and academics.
Fusar-Poli, Paolo; Estradé, Andrés; Esposito, Cecilia M; Rosfort, René; Basadonne, Ilaria; Mancini, Milena; Stanghellini, Giovanni; Otaiku, Jummy; Olanrele, Oluwadamilola; Allen, Lucas; Lamba, Muskan; Alaso, Catherine; Ieri, Judy; Atieno, Margret; Oluoch, Yvonne; Ireri, Phides; Tembo, Ephraim; Phiri, Innocent Z; Nkhoma, Duncan; Sichone, Noah; Siadibbi, Candy; Sundi, Pharidah R I O; Ntokozo, Nyathi; Fusar-Poli, Laura; Floris, Valentina; Mensi, Martina M; Borgatti, Renato; Damiani, Stefano; Provenzani, Umberto; Brondino, Natascia; Bonoldi, Ilaria; Radua, Joaquim; Cooper, Kate; Shin, Jae Il; Cortese, Samuele; Danese, Andrea; Bendall, Sarah; Arango, Celso; Correll, Christoph U; Maj, Mario.
Afiliación
  • Fusar-Poli P; Early Psychosis: Interventions and Clinical-detection (EPIC) Lab, Department of Psychosis Studies, King's College London, London, UK.
  • Estradé A; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Esposito CM; OASIS Service, South London and Maudsley NHS Foundation Trust, London, UK.
  • Rosfort R; Department of Psychiatry and Psychotherapy, University Hospital, Ludwig-Maximilian-University, Munich, Germany.
  • Basadonne I; Early Psychosis: Interventions and Clinical-detection (EPIC) Lab, Department of Psychosis Studies, King's College London, London, UK.
  • Mancini M; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Stanghellini G; S. Kierkegaard Research Centre, University of Copenhagen, Copenhagen, Denmark.
  • Otaiku J; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Olanrele O; Department of Psychological Sciences, Health and Territory, G. D'Annunzio University of Chieti and Pescara, Chieti, Italy.
  • Allen L; Department of Health Sciences, University of Florence, Florence, Italy.
  • Lamba M; Diego Portales University, Santiago, Chile.
  • Alaso C; Young Person's Mental Health Advisory Group, King's College London, London, UK.
  • Ieri J; OASIS Service, South London and Maudsley NHS Foundation Trust, London, UK.
  • Atieno M; OASIS Service, South London and Maudsley NHS Foundation Trust, London, UK.
  • Oluoch Y; Global Mental Health Peer Network, Delhi, India.
  • Ireri P; Global Mental Health Peer Network, Nairobi, Kenya.
  • Tembo E; Global Mental Health Peer Network, Nairobi, Kenya.
  • Phiri IZ; Global Mental Health Peer Network, Nairobi, Kenya.
  • Nkhoma D; Global Mental Health Peer Network, Nairobi, Kenya.
  • Sichone N; Global Mental Health Peer Network, Nairobi, Kenya.
  • Siadibbi C; Global Mental Health Peer Network, Lusaka, Zambia.
  • Sundi PRIO; University of Zambia, Lusaka, Zambia.
  • Ntokozo N; Global Mental Health Peer Network, Lusaka, Zambia.
  • Fusar-Poli L; Global Mental Health Peer Network, Lusaka, Zambia.
  • Floris V; Global Mental Health Peer Network, Lusaka, Zambia.
  • Mensi MM; Global Mental Health Peer Network, Lusaka, Zambia.
  • Borgatti R; Psychology Association of Zambia, Lusaka, Zambia.
  • Damiani S; Lusaka Apex Medical University, Lusaka, Zambia.
  • Provenzani U; Global Mental Health Peer Network, Bulawayo, Zimbabwe.
  • Brondino N; Youth Support Network Trust, Bulawayo, Zimbabwe.
  • Bonoldi I; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Radua J; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Cooper K; National Neurological Institute, IRCCS C. Mondino Foundation, Pavia, Italy.
  • Shin JI; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Cortese S; National Neurological Institute, IRCCS C. Mondino Foundation, Pavia, Italy.
  • Danese A; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Bendall S; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Arango C; Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
  • Correll CU; South London and Maudsley NHS Foundation Trust, London, UK.
  • Maj M; Department of Psychosis Studies, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
World Psychiatry ; 23(2): 191-208, 2024 Jun.
Article en En | MEDLINE | ID: mdl-38727047
ABSTRACT
We provide here the first bottom-up review of the lived experience of mental disorders in adolescents co-designed, co-conducted and co-written by experts by experience and academics. We screened first-person accounts within and outside the medical field, and discussed them in collaborative workshops involving numerous experts by experience - representing different genders, ethnic and cultural backgrounds, and continents - and their family members and carers. Subsequently, the material was enriched by phenomenologically informed perspectives and shared with all collaborators. The inner subjective experience of adolescents is described for mood disorders, psychotic disorders, attention-deficit/hyperactivity disorder, autism spectrum disorders, anxiety disorders, eating disorders, externalizing disorders, and self-harm behaviors. The recollection of individuals' past histories also indexes the prodromal (often transdiagnostic) features predating the psychiatric diagnosis. The experience of adolescents with mental disorders in the wider society is described with respect to their family, their school and peers, and the social and cultural context. Furthermore, their lived experience of mental health care is described with respect to receiving a diagnosis of mental disorder, accessing mental health support, receiving psychopharmacological treatment, receiving psychotherapy, experiencing peer support and mental health activism, and achieving recovery. These findings can impact clinical practice, research, and the whole society. We hope that this co-designed, co-conducted and co-written journey can help us maintain our commitment to protecting adolescents' fragile mental health, and can help them develop into a healthy, fulfilling and contributing adult life.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: World Psychiatry Año: 2024 Tipo del documento: Article Pais de publicación: Italia
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: World Psychiatry Año: 2024 Tipo del documento: Article Pais de publicación: Italia