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Looking after bubba for all our mob: Aboriginal and Torres Strait Islander community experiences and perceptions of stillbirth.
Massi, Luciana; Lewis, Carolyn; Stewart, Skye; Jans, Diana; Gautam, Rupesh; Jalloub, Lina; Bowman, Anneka; Middleton, Philippa; Vlack, Sue; Boyle, Frances M; Shepherd, Carrington; Flenady, Vicki; Stuart-Butler, Deanna; Rae, Kym M.
Afiliación
  • Massi L; Stillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
  • Lewis C; Indigenous Health Research Group, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
  • Stewart S; Curtin Medical School, Curtin University, Perth, WA, Australia.
  • Jans D; Red Nose Australia, Melbourne, VIC, Australia.
  • Gautam R; Apunipima Cape York Health Council, Cairns, QLD, Australia.
  • Jalloub L; Stillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
  • Bowman A; Stillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
  • Middleton P; Department Aboriginal Communities and Families Research Alliance, South Australia Health and Medical Research Institute, Adelaide, SA, Australia.
  • Vlack S; Stillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
  • Boyle FM; Pregnancy and Perinatal Care, South Australia Health and Medical Research Institute, Adelaide, SA, Australia.
  • Shepherd C; School of Public Health, The University of Queensland, Brisbane, QLD, Australia.
  • Flenady V; Stillbirth Centre of Research Excellence, Mater Research Institute, The University of Queensland, Brisbane, QLD, Australia.
  • Stuart-Butler D; Institute for Social Science Research (ISSR), The University of Queensland, Brisbane, QLD, Australia.
  • Rae KM; Curtin Medical School, Curtin University, Perth, WA, Australia.
Front Public Health ; 12: 1385125, 2024.
Article en En | MEDLINE | ID: mdl-38689763
ABSTRACT
The stillbirth rate among Aboriginal and Torres Strait Islander women and communities in Australia is around double that of non-Indigenous women. While the development of effective prevention strategies during pregnancy and improving care following stillbirth for women and families in communities has become a national priority, there has been limited progress in stillbirth disparities. With community permission, this study aimed to gain a better understanding of community experiences, perceptions, and priorities around stillbirth. We undertook an Indigenous researcher-led, qualitative study, with community consultations guided by a cultural protection protocol and within an unstructured research framework. A total of 18 communities were consulted face-to-face through yarning interviews, focus groups and workshops. This included 54 community member and 159 health professional participants across remote, regional, and urban areas of Queensland, Western Australia, Victoria, South Australia, and Northern Territory. Thematic analysis of consultation data identified common themes across five focus/priority areas to address stillbirth Stillbirth or Sorry Business Baby care needs to be family-centered; using Indigenous "ways of knowing, being, and doing" to ensure cultural safety; application of Birthing on Country principles to maternal and perinatal care; and yarning approaches to improve communication and learning or education. The results underscore the critical need to co-design evidence-based, culturally appropriate, and community-acceptable resources to help reduce existing disparities in stillbirth rates.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Grupos Focales / Investigación Cualitativa / Mortinato Límite: Adult / Female / Humans / Male / Pregnancy País/Región como asunto: Oceania Idioma: En Revista: Front Public Health Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Grupos Focales / Investigación Cualitativa / Mortinato Límite: Adult / Female / Humans / Male / Pregnancy País/Región como asunto: Oceania Idioma: En Revista: Front Public Health Año: 2024 Tipo del documento: Article País de afiliación: Australia Pais de publicación: Suiza