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Online decision aid for patients with prostate cancer evaluated by 11 290 patients and 91 urologists in Germany.
Huber, Johannes; Karschuck, Philipp; Valdix, Johanna; Thomas, Christian; Koch, Rainer; Ihrig, Andreas; Hölscher, Tobias; Krones, Tanja; Kessler, Elke; Kliesch, Sabine; Linné, Clemens; Enders, Paul; Michel, Maurice-Stephan; Wülfing, Christian; Groeben, Christer.
Afiliación
  • Huber J; Department of Urology, Philipps University of Marburg, Marburg, Germany.
  • Karschuck P; Department of Urology, Philipps University of Marburg, Marburg, Germany.
  • Valdix J; Department of Urology, Medical Faculty Carl Gustav Carus, TU Dresden, Dresden, Germany.
  • Thomas C; Department of Urology, Medical Faculty Carl Gustav Carus, TU Dresden, Dresden, Germany.
  • Koch R; Department of Urology, Philipps University of Marburg, Marburg, Germany.
  • Ihrig A; Division of Psycho-Oncology, Department of General Internal Medicine and Psychosomatic, University Hospital Heidelberg, Heidelberg, Germany.
  • Hölscher T; Department of Radiotherapy and Radiation Oncology, Faculty of Medicine and University Hospital Carl Gustav Carus, TU Dresden, Dresden, Germany.
  • Krones T; Institute of Biomedical Ethics and History of Medicine University of Zürich, University Hospital Zürich, Zürich, Switzerland.
  • Kessler E; ASD Concepts GmbH & Co. KG - Institut für Patientenzentrierte Versorgungsformen, Reinheim, Germany.
  • Kliesch S; Department of Clinical and Surgical Andrology, Centre for Reproductive Medicine and Andrology, University Hospital Münster, Münster, Germany.
  • Linné C; Urological Practice, Dresden, Germany.
  • Enders P; Prostate Cancer Patient Support Organization of Germany (BPS), Bonn, Germany.
  • Michel MS; Department of Urology and Urosurgery, University Hospital Manheim, Mannheim, Germany.
  • Wülfing C; Department of Urology, Asklepios Klinik Altona, Hamburg, Germany.
  • Groeben C; Department of Urology, Philipps University of Marburg, Marburg, Germany.
BJU Int ; 134(2): 239-248, 2024 Aug.
Article en En | MEDLINE | ID: mdl-38506410
ABSTRACT

OBJECTIVE:

To evaluate the nationwide online decision aid 'Entscheidungshilfe Prostatakrebs' (established in 2016, >11.000 users and 60 new users/week) for patients with non-metastatic prostate cancer (PCa), from the perspective of patients and urologists. PATIENTS AND

METHODS:

To provide personalised information, the tool collects most of the International Consortium for Health Outcomes Measurement standard set, personal preferences, psychological features, and a validated rating of the tool. To evaluate urologists' opinions, we developed a structured two-page questionnaire. All data were collected anonymously.

RESULTS:

From June 2016 to December 2020, 11 290 patients used the PCa decision aid. Their median (interquartile range [IQR]) age was 67 (61-72) years. The median (IQR) time from initial diagnosis to using the tool was 4 (3-7) weeks. In all, 87.7% of users reported high satisfaction. In a multivariable model, predictors for considering observation were higher knowledge, using the decision aid alone, lower oncological risk, normal erectile function, and respective personal preferences. Of 194 urologists, 91 (47%) had implemented the decision aid in their clinical practice. The urologists' mean (SD) satisfaction score (1 'very good'; 6 'unsatisfactory') with it was 1.45 (0.55), and 92% recommended it. Half of the urologists reported time savings.

CONCLUSION:

Patients and urologists report a very high level of acceptance and satisfaction with this online tool. It offers advantages in shared decision-making and time efficiency. The usage of the decision aid might improve the adoption of active surveillance and watchful waiting when indicated.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Neoplasias de la Próstata / Técnicas de Apoyo para la Decisión / Urólogos Límite: Aged / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: BJU Int Asunto de la revista: UROLOGIA Año: 2024 Tipo del documento: Article País de afiliación: Alemania Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
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XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Neoplasias de la Próstata / Técnicas de Apoyo para la Decisión / Urólogos Límite: Aged / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: BJU Int Asunto de la revista: UROLOGIA Año: 2024 Tipo del documento: Article País de afiliación: Alemania Pais de publicación: Reino Unido