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Transportation, childcare, lodging, and meals: Key for participant engagement and inclusion of historically underrepresented populations in the healthy brain and child development birth cohort.
Zgierska, Aleksandra E; Gramly, Tatum; Prestayko, Nicholas; Symons Downs, Danielle; Murray, Traci M; Yerby, Lea G; Howell, Brittany; Stahlman, Barbara; Cruz, Jennifer; Agolli, Arjola; Horan, Holly; Hilliard, Florence; Croff, Julie M.
Afiliación
  • Zgierska AE; Departments of Family and Community Medicine, Anesthesiology and Perioperative Medicine, and Public Health Sciences, Pennsylvania State University College of Medicine, Hershey, PA, USA.
  • Gramly T; Department of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
  • Prestayko N; Department of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
  • Symons Downs D; Department of Kinesiology and College of Medicine, Department of Obstetrics and Gynecology, Pennsylvania State University College of Health and Human Development, University Park, PA, USA.
  • Murray TM; National Institutes of Health, National Institute on Drug Abuse, Bethesda, MD, USA.
  • Yerby LG; Department of Community Medicine and Population Health, The University of Alabama College of Community Health Sciences, Tuscaloosa, AL, USA.
  • Howell B; Department of Human Development and Family Science, Virginia Tech, Fralin Biomedical Research Institute, Roanoke, VA, USA.
  • Stahlman B; Department of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
  • Cruz J; Department of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
  • Agolli A; Department of Family and Community Medicine, Pennsylvania State University College of Medicine, Hershey, PA, USA.
  • Horan H; Department of Obstetrics and Gynecology, Global and Rural Women's Health Program, Heersink School of Medicine, The University of Alabama at Birmingham, Birmingham, AL, USA.
  • Hilliard F; University of Wisconsin-Madison Waisman Center, Madison, WI, USA.
  • Croff JM; Oklahoma State University Center for Health Sciences, Tulsa, OK, USA.
J Clin Transl Sci ; 8(1): e38, 2024.
Article en En | MEDLINE | ID: mdl-38476249
ABSTRACT

Introduction:

Participant recruitment and retention (R&R) are well-documented challenges in longitudinal studies, especially those involving populations historically underrepresented in research and vulnerable groups (e.g., pregnant people or young children and their families), as is the focus of the HEALthy Brain and Child Development (HBCD) birth cohort study. Subpar access to transportation, overnight lodging, childcare, or meals can compromise R&R; yet, guidance on how to overcome these "logistical barriers" is sparse. This study's goal was to learn about the HBCD sites' plans and develop best practice recommendations for the HBCD consortium for addressing these logistical barriers.

Methods:

The HBCD's workgroups developed a survey asking the HBCD sites about their plans for supporting research-related transportation, lodging, childcare, and meals, and about the presence of institutional policies to guide their approach. Descriptive statistics described the quantitative survey data. Qualitative survey responses were brief, not warranting formal qualitative analysis; their content was summarized.

Results:

Twenty-eight respondents, representing unique recruitment locations across the U.S., completed the survey. The results indicated substantial heterogeneity across the respondents in their approach toward supporting research-related transportation, lodging, childcare, and meals. Three respondents were aware of institutional policies guiding research-related transportation (10.7%) or childcare (10.7%).

Conclusions:

This study highlighted heterogeneity in approaches and scarcity of institutional policies regarding research-related transportation, lodging, childcare, and meals, underscoring the need for guidance in this area to ensure equitable support of participant R&R across different settings and populations, so that participants are representative of the larger community, and increase research result validity and generalizability.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Clin Transl Sci Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: J Clin Transl Sci Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido