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Effects of a neuropsychosocial teleassistance intervention on social cognition and health-related quality of life of pediatric patients with neuromuscular diseases.
García, Irune; Martínez, Oscar; Amayra, Imanol; Salgueiro, Monika; Rodríguez, Alicia Aurora; López-Paz, Juan Francisco.
Afiliación
  • García I; Neuro-e-Motion Research Team, Department of Psychology, Faculty of Health Sciences, University of Deusto, Spain.
  • Martínez O; Neuro-e-Motion Research Team, Department of Psychology, Faculty of Health Sciences, University of Deusto, Spain.
  • Amayra I; Neuro-e-Motion Research Team, Department of Psychology, Faculty of Health Sciences, University of Deusto, Spain.
  • Salgueiro M; Department of Clinical and Health Psychology and Research Methodology, Faculty of Psychology, University of the Basque Country UPV/EHU, Spain.
  • Rodríguez AA; Neuro-e-Motion Research Team, Department of Psychology, Faculty of Health Sciences, University of Deusto, Spain.
  • López-Paz JF; Neuro-e-Motion Research Team, Department of Psychology, Faculty of Health Sciences, University of Deusto, Spain.
J Pediatr Psychol ; 49(8): 525-535, 2024 Aug 01.
Article en En | MEDLINE | ID: mdl-38452290
ABSTRACT

OBJECTIVE:

This study aimed to determine the effects of a neuropsychosocial teleassistance group-based intervention on improving social cognitive functioning and health-related quality of life (HRQoL) in pediatric neuromuscular diseases (NMD).

METHODS:

Thirty-five pediatric patients with NMD were assigned to the neuropsychosocial intervention program (n = 20) or waiting list control condition (n = 15). The intervention group received an integrative approach that combines training in social cognition with cognitive behavioral therapy. All participants completed a neuropsychological and clinical assessment at baseline and follow-up, which included tests of social cognition, both for emotion recognition and theory of mind, and HRQoL. Repeated-measures multivariate analysis of covariance was used to determine the effects of the teleassistance program.

RESULTS:

Group × Time interactions revealed significant improvements in the intervention group as compared with the control group for different social cognition's indicators (AR NEPSY-II p = .003, η2p = .24; TM NEPSY p < .001, η2p = .35; Verbal task p < .001, η2p = .35; Happé's Strange Stories p = .049, η2p = .11) and HRQoL (Psychosocial health p = .012, η2p = .18; Emotional functioning p = .037, η2p = 0.13; Social functioning p = .006, η2p = .21; Total p = .013, η2p = .17), showing medium to large effects.

CONCLUSIONS:

Patients receiving the neuropsychosocial intervention showed improvements in their social cognition performance and psychosocial HRQoL, providing evidence about the positive effects of the program in pediatric patients with NMD. This should be considered in further research and interventions in this field.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Terapia Cognitivo-Conductual / Cognición Social / Enfermedades Neuromusculares Límite: Adolescent / Child / Female / Humans / Male Idioma: En Revista: J Pediatr Psychol Año: 2024 Tipo del documento: Article País de afiliación: España Pais de publicación: Estados Unidos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Terapia Cognitivo-Conductual / Cognición Social / Enfermedades Neuromusculares Límite: Adolescent / Child / Female / Humans / Male Idioma: En Revista: J Pediatr Psychol Año: 2024 Tipo del documento: Article País de afiliación: España Pais de publicación: Estados Unidos