Supporting active engagement of adults with intellectual disabilities in lifestyle modification interventions: a realist evidence synthesis of what works, for whom, in what context and why.

Westrop, S C; Rana, D; Jaiswal, N; Wu, O; McGarty, A M; Melville, C; Ells, L; Lally, P; McEwan, M; Harris, L; Germeni, E

Westrop, S C; Rana, D; Jaiswal, N; Wu, O; McGarty, A M; Melville, C; Ells, L; Lally, P; McEwan, M; Harris, L; Germeni, E.

Afiliación

Westrop SC; Mental Health and Wellbeing, School of Health & Wellbeing, University of Glasgow, Glasgow, UK.
Rana D; Health Economics and Health Technology Assessment, School of Health and Wellbeing, University of Glasgow, Glasgow, UK.
Jaiswal N; Health Economics and Health Technology Assessment, School of Health and Wellbeing, University of Glasgow, Glasgow, UK.
Wu O; Health Economics and Health Technology Assessment, School of Health and Wellbeing, University of Glasgow, Glasgow, UK.
McGarty AM; Mental Health and Wellbeing, School of Health & Wellbeing, University of Glasgow, Glasgow, UK.
Melville C; Mental Health and Wellbeing, School of Health & Wellbeing, University of Glasgow, Glasgow, UK.
Ells L; Obesity Institute, School of Health, Leeds Beckett University, City Campus, Leeds, UK.
Lally P; UCL Institute of Epidemiology and Health Care, University College London, London, UK.
McEwan M; Department of Psychology, University of Surrey, Guildford, UK.
Harris L; People First (Scotland), Edinburgh, UK.
Germeni E; School of Health and Wellbeing, University of Glasgow, Glasgow, UK.

J Intellect Disabil Res ; 68(4): 293-316, 2024 Apr.

Article en En | MEDLINE | ID: mdl-38379511

ABSTRACT

ABSTRACT

BACKGROUND:

Lifestyle modification interventions for adults with intellectual disabilities have had, to date, mixed effectiveness. This study aimed to understand how lifestyle modification interventions for adults with intellectual disabilities work, for whom they work and in what circumstances.

METHODS:

A realist evidence synthesis was conducted that incorporated input from adults with intellectual disabilities and expert researchers. Following the development of an initial programme theory based on key literature and input from people with lived experience and academics working in this field, five major databases (MEDLINE, EMBASE, CINAHL, PsycINFO and ASSIA) and clinical trial repositories were systematically searched. Data from 79 studies were synthesised to develop context, mechanism and outcome configurations (CMOCs).

RESULTS:

The contexts and mechanisms identified related to the ability of adults with intellectual disabilities to actively take part in the intervention, which in turn contributes to what works, for whom and in what circumstances. The included CMOCs related to support involvement, negotiating the balance between autonomy and behaviour change, fostering social connectedness and fun, accessibility and suitability of intervention strategies and delivery and broader behavioural pathways to lifestyle change. It is also essential to work with people with lived experiences when developing and evaluating interventions.

CONCLUSIONS:

Future lifestyle interventions research should be participatory in nature, and accessible data collection methods should also be explored as a way of including people with severe and profound intellectual disabilities in research. More emphasis should be given to the broader benefits of lifestyle change, such as opportunities for social interaction and connectedness.

Asunto(s)

Discapacidad Intelectual; Humanos; Discapacidad Intelectual/rehabilitación; Adulto; Participación del Paciente

Palabras clave

Alcohol; Diet; Intellectual disabilities; Physical activity; Realist synthesis; Smoking

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Discapacidad Intelectual Límite: Adult / Humans Idioma: En Revista: J Intellect Disabil Res Asunto de la revista: TRANSTORNOS MENTAIS Año: 2024 Tipo del documento: Article País de afiliación: Reino Unido Pais de publicación: Reino Unido

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