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Development of a novel clinimetric tool: PAtient Reported Disease Activity Index in Rheumatoid Arthritis (PARDAI-RA) by PANLAR, for the assessment of patients living with rheumatoid arthritis.
Fernández-Ávila, Daniel G; Patiño-Hernández, Daniela; Moreno-Luna, Socorro; Brance, Lorena; Arbeláez, Álvaro; Vilar, Antonio Cachafeiro; Lozada, Carlos; Ríos, Carlos; Toro, Carlos; Ramírez, Claudia; Pons-Estel, Guillermo; Ugarte-Gil, Manuel; Narváez, María; Albanese, Miguel; Roa, Orlando; Ruiz, Oscar; Burgos, Paula; Xavier, Ricardo; Fuentes, Yurilis; Soriano, Enrique.
Afiliación
  • Fernández-Ávila DG; Rheumatology Division, Pontificia Universidad Javeriana - Hospital Universitario San Ignacio, Bogotá, Colombia. daniel.fernandez@javeriana.edu.co.
  • Patiño-Hernández D; Internal Medicina Department, Hospital Universitario San Ignacio, Bogotá, Colombia.
  • Moreno-Luna S; Epidemiology Department, Pontificia Universidad Javeriana, Bogotá, Colombia.
  • Brance L; Rheumatology Division, Universidad Nacional de Rosario, Santa Fe, Argentina.
  • Arbeláez Á; Clínica Imbanaco, Cali, Colombia.
  • Vilar AC; Pacífica Salud, Panamá, Panama.
  • Lozada C; Rheumatology Division, University of Miami, Coral Gables, USA.
  • Ríos C; Universidad de Especialidades Espíritu Santo, Guayaquil, Ecuador.
  • Toro C; Centro de Referencia en Osteoporosis y Reumatología, Cali, Colombia.
  • Ramírez C; Rheumatology Division Keralty, Bogotá, Colombia.
  • Pons-Estel G; Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Rosario, Argentina.
  • Ugarte-Gil M; Universidad Científica del Sur, Lima, Peru.
  • Narváez M; Rheumatology Division Keralty, Bogotá, Colombia.
  • Albanese M; Centro de Asistencia del CASMU, Montevideo, Uruguay.
  • Roa O; Rheumatology Division Keralty, Bogotá, Colombia.
  • Ruiz O; Rheumatology Division Keralty, Bogotá, Colombia.
  • Burgos P; Clinic Immunology and Rheumatology Department, Pontificia Universidad Católica de Chile, Santiago de Chile, Chile.
  • Xavier R; Rheumatology Service Hospital de Clinicas de Porto Alegre, Porto Alegre, Brazil.
  • Fuentes Y; Universidad de Oriente, Cumaná, Venezuela.
  • Soriano E; Rheumatology Division, Hospital Italiano de Buenos Aires, Buenos Aires, Argentina.
Clin Rheumatol ; 43(4): 1277-1285, 2024 Apr.
Article en En | MEDLINE | ID: mdl-38355831
ABSTRACT

BACKGROUND:

Clinical experience has shown that a single measure is not sufficient to assess disease activity in rheumatoid arthritis (RA). Various clinimetric tools are necessary to address the many clinical situations that can arise.

METHODS:

In order to develop a comprehensive measurement tool, the Pan American League of Associations for Rheumatology searched for the most frequent measures of disease activity applied in RA by means of a semi-systematic review of the available literature.

RESULTS:

We found that the most frequently reported measures of disease activity were the 28-joint Disease Activity Score, C-reactive protein, and the erythrocyte sedimentation rate, followed by patient-reported measures of pain and stiffness and many other composite indices and patient-reported outcome measures. The most frequent physician-reported sign of disease was the swollen joint count, and the most frequently self-reported feature was the increase in disease activity or flares.

CONCLUSION:

In this article, we present a new clinimetric tool developed based on expert consensus and on data retrieved from our search. Disease activity can be better assessed by combining various data sources, such as clinical, laboratory, and self-reported outcomes. These variables were included in our novel clinimetric tool. Key Points • The goal of treatment of RA is to achieve the best possible control of inflammation, or even remission; therefore, disease management should include systematic and regular evaluation of inflammation and health status. • Clinimetric tools evaluate a series of variables (e.g., symptoms, functional capacity, disease severity, quality of life, disease progression) and can reveal substantial prognostic and therapeutic differences between patients. • Our clinimetric tool, which is based on a combination of data (e.g., clinical variables, laboratory results, PROMs), can play a relevant role in patient assessment and care.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Reumatoide / Antirreumáticos Tipo de estudio: Prognostic_studies Aspecto: Patient_preference Límite: Humans Idioma: En Revista: Clin Rheumatol Año: 2024 Tipo del documento: Article País de afiliación: Colombia Pais de publicación: Alemania

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Reumatoide / Antirreumáticos Tipo de estudio: Prognostic_studies Aspecto: Patient_preference Límite: Humans Idioma: En Revista: Clin Rheumatol Año: 2024 Tipo del documento: Article País de afiliación: Colombia Pais de publicación: Alemania