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eSCCIP: A Psychosocial eHealth Intervention for Parents of Children with Cancer.
Canter, Kimberly S; Deatrick, Janet A; Hilgart, Michelle M; Myers, Jeffrey; Vega, Gabriela; Ritterband, Lee M; Kazak, Anne E.
Afiliación
  • Canter KS; Nemours Center for Healthcare Delivery Science, Nemours Children's Health System, Wilmington, Delaware; Department of Pediatrics, Thomas Jefferson University, Philadelphia, Pennsylvania.
  • Deatrick JA; Department of Family and Community Nursing, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania.
  • Hilgart MM; Center for Behavioral Health and Technology, University of Virginia School of Medicine, Charlottesville, Virginia.
  • Myers J; Nemours Biomedical Research, Nemours Children's Health System, Wilmington, Delaware.
  • Vega G; Nemours Children's Health System, Wilmington, Delaware.
  • Ritterband LM; Center for Behavioral Health and Technology, University of Virginia School of Medicine, Charlottesville, Virginia.
  • Kazak AE; Nemours Children's Health System, Wilmington, Delaware.
Clin Pract Pediatr Psychol ; 7(1): 44-56, 2019 Mar.
Article en En | MEDLINE | ID: mdl-38333421
ABSTRACT

Objective:

eHealth interventions may facilitate the dissemination of evidence-based psychosocial interventions to families of children with chronic illnesses, including cancer. This article describes a four-phase, mixed-methods, user-centered approach to the design and evaluation of a novel psychosocial intervention for parents of children with cancer (Electronic Surviving Cancer Competently Intervention Program [eSCCIP]), adapted from an in-person intervention (Surviving Cancer Competently Intervention Program).

Methods:

Development of eSCCIP involved a multidisciplinary design team of content and eHealth experts. Iterative Think Aloud testing and beta testing with parents of children with cancer was also completed.

Results:

An intensive, user-centered development and evaluation process was utilized to develop an eHealth intervention for parents of children with cancer. Initial testers rated eSCCIP favorably on questionnaires evaluating user experience and perceptions, and provided positive feedback and suggestions for additional improvement through qualitative interviews.

Conclusions:

Initial results suggest that eSCCIP may be an acceptable, feasible, and usable intervention for parents of children with cancer. eSCCIP is now ready for a larger pilot evaluation of usability, feasibility, and impact on target outcomes, including the reduction of anxiety and PTSS and improvements in family functioning.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Qualitative_research Idioma: En Revista: Clin Pract Pediatr Psychol Año: 2019 Tipo del documento: Article Pais de publicación: Estados Unidos

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Qualitative_research Idioma: En Revista: Clin Pract Pediatr Psychol Año: 2019 Tipo del documento: Article Pais de publicación: Estados Unidos