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Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States.
Flurie, Maurice; Converse, Monica; Wassman, E Robert; LaMoreaux, Brian; Edwards, N Lawrence; Flowers, Colton; Hernandez, Daniel; Hernandez, Helen W; Ho, Gary; Parker, Christopher; DeFelice, Christopher; Picone, Maria.
Afiliación
  • Flurie M; TREND Community, Philadelphia, PA, USA.
  • Converse M; TREND Community, Philadelphia, PA, USA.
  • Wassman ER; TREND Community, Philadelphia, PA, USA.
  • LaMoreaux B; Horizon Therapeutics Plc, Deerfield, IL, USA.
  • Edwards NL; Department of Medicine, University of Florida, Gainesville, FL, USA.
  • Flowers C; TREND Community, Philadelphia, PA, USA.
  • Hernandez D; Global Healthy Living Foundation, Upper Nyack, New York, USA.
  • Hernandez HW; KAL Research Initiatives LLC, Katy, TX, USA.
  • Ho G; TREND Community, Philadelphia, PA, USA.
  • Parker C; Gout Support Group of America, Austin, TX, USA.
  • DeFelice C; Gout Support Group of America, Austin, TX, USA.
  • Picone M; TREND Community, Philadelphia, PA, USA.
Rheumatol Ther ; 11(2): 301-311, 2024 Apr.
Article en En | MEDLINE | ID: mdl-38253955
ABSTRACT

INTRODUCTION:

This study aimed to characterize patient-reported outcomes from social media conversations in the gout community. The impact of management strategy differences on the community's emotional states was explored.

METHODS:

We analyzed two social media sources using a variety of natural language processing techniques. We isolated conversations with a high probability of discussing disease management (score > 0.99). These conversations were stratified by management type proactive or reactive. The polarity (positivity/negativity) of language and emotions conveyed in statements shared by community members was assessed by management type.

RESULTS:

Among the statements related to management, reactive management (e.g., urgent care) was mentioned in 0.5% of statements, and proactive management (e.g., primary care) was mentioned in 0.6% of statements. Reactive management statements had a significantly larger proportion of negative words (59%) than did proactive management statements (44%); "fear" occurred more frequently with reactive statements, whereas "trust" predominated in proactive statements. Allopurinol was the most common medication in proactive management statements, whereas reactive management had significantly higher counts of prednisone/steroid mentions.

CONCLUSIONS:

A unique aspect of examining gout-related social media conversations is the ability to better understand the intersection of clinical management and emotional impacts in the gout community. The effect of social media statements was significantly stratified by management type for gout community members, where proactive management statements were characterized by more positive language than reactive management statements. These results suggest that proactive disease management may result in more positive mental and emotional experiences in patients with gout.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Aspecto: Patient_preference Idioma: En Revista: Rheumatol Ther Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Aspecto: Patient_preference Idioma: En Revista: Rheumatol Ther Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido