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The Development of a Clinical Registry Digital Database on Invasive Fungal Infections in India: Advancing Epidemiological Understanding and Patient Care.
Kaur, Harleen; Singh, Kh Jitenkumar; Sharma, Saurabh; Das, Madhuchhanda; Albert, Venencia; Ojha, Anup Kumar; Singh, Gagandeep; Hallur, Vinaykumar; Savio, Jayanthi; Pamidimukkala, Umabala; Karuna, Tadepalli; Nath, Reema; Xess, Immaculata; Gupta, Prashant; Shetty, Anjali.
Afiliación
  • Kaur H; ICMR-National Institute of Medical Statistics (ICMR-NIMS), New Delhi 110029, India.
  • Singh KJ; ICMR-National Institute of Medical Statistics (ICMR-NIMS), New Delhi 110029, India.
  • Sharma S; ICMR-National Institute of Medical Statistics (ICMR-NIMS), New Delhi 110029, India.
  • Das M; Indian Council of Medical Research (ICMR), New Delhi 110029, India.
  • Albert V; Indian Council of Medical Research (ICMR), New Delhi 110029, India.
  • Ojha AK; Indian Council of Medical Research (ICMR), New Delhi 110029, India.
  • Singh G; Department of Microbiology, All India Institute of Medical Sciences (AIIMS), New Delhi 110029, India.
  • Hallur V; Department of Microbiology, All India Institute of Medical Sciences (AIIMS), Bhubaneswar 751019, India.
  • Savio J; Department of Microbiology, St. John's Medical College (SJMC), Bengaluru 560034, India.
  • Pamidimukkala U; Department of Microbiology, Nizam's Institute of Medical Sciences (NIMS), Hyderabad 500082, India.
  • Karuna T; Department of Microbiology, All India Institute of Medical Sciences (AIIMS), Bhopal 462020, India.
  • Nath R; Department of Microbiology, Assam Medical College (AMC), Dibrugarh 786002, India.
  • Xess I; Department of Microbiology, All India Institute of Medical Sciences (AIIMS), New Delhi 110029, India.
  • Gupta P; Department of Microbiology, King George's Medical University (KGMU), Lucknow 226003, India.
  • Shetty A; PD Hinduja, Mumbai 400016, India.
J Fungi (Basel) ; 10(1)2024 Jan 05.
Article en En | MEDLINE | ID: mdl-38248951
ABSTRACT
A well-structured digital database is essential for any national priority project as it can provide real-time data analysis and facilitate quick decision making. In recent times, particularly after the COVID-19 pandemic, invasive fungal infections (IFIs) have emerged as a significant public health challenge in India, affecting vulnerable population, including immunocompromised individuals. The lack of comprehensive and well-structured data on IFIs has hindered efforts to understand their true burden and optimize patient care. To address this critical knowledge gap, the ICMR has undertaken a Pan-India pioneer initiative to develop a network of Advanced Mycology Diagnostic research centres in different geographical zones of the country (ICMR-MycoNet). Under the aegis of this project, a clinical registry on IFIs in the ICUs is initiated. This process paper presents a detailed account of the steps involved in the establishment of a web-based data entering and monitoring platform to capture data electronically, ensuring robust and secure data collection and management. This system not only allows participating ICMR-MycoNet centres to enter patient information directly into the database using standardized Case Report Form (CRF) but also includes data validation checks to ensure the accuracy and completeness of entered data. It is complemented by a real-time, web-based, and adaptable data visualization platform. This registry aims to provide crucial epidemiological insights, promote evidence-based hospital infection control programs, and ultimately improve patient outcomes in the face of this formidable healthcare challenge.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies Idioma: En Revista: J Fungi (Basel) Año: 2024 Tipo del documento: Article País de afiliación: India Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Prognostic_studies Idioma: En Revista: J Fungi (Basel) Año: 2024 Tipo del documento: Article País de afiliación: India Pais de publicación: Suiza