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Disclosing Results of Tests for Covert Consciousness: A Framework for Ethical Translation.
Young, Michael J; Kazazian, Karnig; Fischer, David; Lissak, India A; Bodien, Yelena G; Edlow, Brian L.
Afiliación
  • Young MJ; Center for Neurotechnology and Neurorecovery, Department of Neurology, Massachusetts General Hospital and Harvard Medical School, 101 Merrimac Street, Suite 310, Boston, MA, 02114, USA. michael.young@mgh.harvard.edu.
  • Kazazian K; Center for Neurotechnology and Neurorecovery, Department of Neurology, Massachusetts General Hospital and Harvard Medical School, 101 Merrimac Street, Suite 310, Boston, MA, 02114, USA.
  • Fischer D; Western Institute of Neuroscience, Western University, London, ON, Canada.
  • Lissak IA; University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, USA.
  • Bodien YG; Center for Neurotechnology and Neurorecovery, Department of Neurology, Massachusetts General Hospital and Harvard Medical School, 101 Merrimac Street, Suite 310, Boston, MA, 02114, USA.
  • Edlow BL; Center for Neurotechnology and Neurorecovery, Department of Neurology, Massachusetts General Hospital and Harvard Medical School, 101 Merrimac Street, Suite 310, Boston, MA, 02114, USA.
Neurocrit Care ; 40(3): 865-878, 2024 Jun.
Article en En | MEDLINE | ID: mdl-38243150
ABSTRACT
The advent of neurotechnologies including advanced functional magnetic resonance imaging and electroencephalography to detect states of awareness not detectable by traditional bedside neurobehavioral techniques (i.e., covert consciousness) promises to transform neuroscience research and clinical practice for patients with brain injury. As these interventions progress from research tools into actionable, guideline-endorsed clinical tests, ethical guidance for clinicians on how to responsibly communicate the sensitive results they yield is crucial yet remains underdeveloped. Drawing on insights from empirical and theoretical neuroethics research and our clinical experience with advanced neurotechnologies to detect consciousness in behaviorally unresponsive patients, we critically evaluate ethical promises and perils associated with disclosing the results of clinical covert consciousness assessments and describe a semistructured approach to responsible data sharing to mitigate potential risks.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Estado de Conciencia / Electroencefalografía Tipo de estudio: Guideline Aspecto: Ethics Límite: Humans Idioma: En Revista: Neurocrit Care Asunto de la revista: NEUROLOGIA / TERAPIA INTENSIVA Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Estado de Conciencia / Electroencefalografía Tipo de estudio: Guideline Aspecto: Ethics Límite: Humans Idioma: En Revista: Neurocrit Care Asunto de la revista: NEUROLOGIA / TERAPIA INTENSIVA Año: 2024 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos