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Engaging stakeholders to level up COPD care in LMICs: lessons learned from the "Breathe Well" programme in Brazil, China, Georgia, and North Macedonia.
Fernandes, Genevie; Williams, Siân; Adab, Peymané; Gale, Nicola; de Jong, Corina; de Sousa, Jaime Correia; Cheng, K K; Chi, Chunhua; Cooper, Brendan G; Dickens, Andrew P; Enocson, Alexandra; Farley, Amanda; Jolly, Kate; Jowett, Sue; Maglakelidze, Maka; Maghlakelidze, Tamaz; Martins, Sonia; Sitch, Alice; Stamenova, Aleksandra; Stavrikj, Katarina; Stelmach, Rafael; Turner, Alice; Pan, Zihan; Pang, Hui; Zhang, Jianxin; Jordan, Rachel E.
Afiliación
  • Fernandes G; International Primary Care Respiratory Group, London, UK. gfernan2@exseed.ed.ac.uk.
  • Williams S; Usher Institute, University of Edinburgh, Edinburgh, UK. gfernan2@exseed.ed.ac.uk.
  • Adab P; International Primary Care Respiratory Group, London, UK.
  • Gale N; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • de Jong C; Health Services Management Centre, School of Social Policy, College of Social Sciences, University of Birmingham, Birmingham, UK.
  • de Sousa JC; International Primary Care Respiratory Group, London, UK.
  • Cheng KK; International Primary Care Respiratory Group, London, UK.
  • Chi C; Life and Health Sciences Research Institute (ICVS), School of Medicine, University of Minho, Braga, Portugal.
  • Cooper BG; PT Government Associate Laboratory, ICVS/3B's, Braga/Guimarães, Portugal.
  • Dickens AP; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • Enocson A; Department of General Practice, Peking University First Hospital, Beijing, China.
  • Farley A; Lung Function & Sleep, Queen Elizabeth Hospital, Birmingham, UK.
  • Jolly K; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • Jowett S; Observational and Pragmatic Research Institute, Midview City, Singapore.
  • Maglakelidze M; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • Maghlakelidze T; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • Martins S; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • Sitch A; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • Stamenova A; Georgian Respiratory Association, Tbilisi, Georgia.
  • Stavrikj K; Petre Shotadze Tbilisi Medical Academy, Tbilisi, Georgia.
  • Stelmach R; Georgian Respiratory Association, Tbilisi, Georgia.
  • Turner A; Ivane Javakhishvili Tbilisi State University, Tbilisi, Georgia.
  • Pan Z; Family Medicine, ABC Medical School, São Paolo, Brazil.
  • Pang H; Institute of Applied Health Research, University of Birmingham, Birmingham, UK.
  • Zhang J; NIHR Birmingham Biomedical Research Centre, University Hospitals Birmingham NHS Foundation Trust and University of Birmingham, Birmingham, UK.
  • Jordan RE; Faculty of Medicine, Institute of Social Medicine, Ss. Cyril and Methodius University in Skopje, Skopje, Republic of North Macedonia.
BMC Health Serv Res ; 24(1): 66, 2024 Jan 12.
Article en En | MEDLINE | ID: mdl-38216986
ABSTRACT

BACKGROUND:

Effective stakeholder engagement in health research is increasingly being recognised and promoted as an important pathway to closing the gap between knowledge production and its use in health systems. However, little is known about its process and impacts, particularly in low-and middle-income countries. This opinion piece draws on the stakeholder engagement experiences from a global health research programme on Chronic Obstructive Pulmonary Disease (COPD) led by clinician researchers in Brazil, China, Georgia and North Macedonia, and presents the process, outcomes and lessons learned. MAIN BODY Each country team was supported with an overarching engagement protocol and mentored to develop a tailored plan. Patient involvement in research was previously limited in all countries, requiring intensive efforts through personal communication, meetings, advisory groups and social media. Accredited training programmes were effective incentives for participation from healthcare providers; and aligning research findings with competing policy priorities enabled interest and dialogue with decision-makers. The COVID-19 pandemic severely limited possibilities for planned engagement, although remote methods were used where possible. Planned and persistent engagement contributed to shared knowledge and commitment to change, including raised patient and public awareness about COPD, improved skills and practice of healthcare providers, increased interest and support from clinical leaders, and dialogue for integrating COPD services into national policy and practice.

CONCLUSION:

Stakeholder engagement enabled relevant local actors to produce and utilise knowledge for small wins such as improving day-to-day practice and for long-term goals of equitable access to COPD care. For it to be successful and sustained, stakeholder engagement needs to be valued and integrated throughout the research and knowledge generation process, complete with dedicated resources, contextualised and flexible planning, and commitment.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Países en Desarrollo / Pandemias Tipo de estudio: Guideline / Prognostic_studies Aspecto: Determinantes_sociais_saude Límite: Humans País/Región como asunto: America do sul / Brasil / Europa Idioma: En Revista: BMC Health Serv Res Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE Año: 2024 Tipo del documento: Article País de afiliación: Reino Unido Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Países en Desarrollo / Pandemias Tipo de estudio: Guideline / Prognostic_studies Aspecto: Determinantes_sociais_saude Límite: Humans País/Región como asunto: America do sul / Brasil / Europa Idioma: En Revista: BMC Health Serv Res Asunto de la revista: PESQUISA EM SERVICOS DE SAUDE Año: 2024 Tipo del documento: Article País de afiliación: Reino Unido Pais de publicación: Reino Unido