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Formal social support and quality of life of caregivers with autistic children: a large-scale nationwide survey in China.
Ran, Qingqing; Tu, Liangzhi; Wu, Yinghui; Zhang, Shunming; Zhang, Erliang; Li, Huilun; Su, Ya; Xiang, Mi.
Afiliación
  • Ran Q; International Peace Maternity and Child Health Hospital, School of Medicine, Shanghai Jiao Tong University, Shanghai, China.
  • Tu L; School of Public Health, Shanghai Jiao Tong University, Shanghai, China.
  • Wu Y; College of Stomatology, Shanghai Jiao Tong University School of Medicine, Shanghai, China.
  • Zhang S; School of Nursing, Shanghai Jiao Tong University, Shanghai, China.
  • Zhang E; Shanghai American School, Shanghai, China.
  • Li H; International Peace Maternity and Child Health Hospital, School of Medicine, Shanghai Jiao Tong University, Shanghai, China.
  • Su Y; School of Public Health, Shanghai Jiao Tong University, Shanghai, China.
  • Xiang M; International Peace Maternity and Child Health Hospital, School of Medicine, Shanghai Jiao Tong University, Shanghai, China.
Front Public Health ; 11: 1282778, 2023.
Article en En | MEDLINE | ID: mdl-38179564
ABSTRACT

Introduction:

Caregivers of children with autism spectrum disorder (ASD) were reported poor quality of life (QOL). Formal social support might improve the QOL of caregivers, however, limited research to date has focused on this association in China and formal social support for this group is conspicuously lacking. The study was aim to understand the QOL in male and female caregivers with ASD children in China and to explore the relationship between QOL and formal social support for caregivers with children with ASD through a large-scale nationwide survey.

Methods:

An online questionnaire was used to conduct a cross-sectional study with a sample of 6,120 caregivers of children with ASD. Relationship between Quality of Life and several potential predictors is measured and analyzed. Quality of life were measured by Medical Study Short-Form Health Survey version 2 (Chinese version). Multivariate logistic regression analysis was used to analyze the factors affecting caregivers' QOL.

Results:

The results revealed that the QOL of caregivers of autistic children in China was poor especially male caregivers. Social support was a positive predictor. More importantly, formal social support from rehabilitation institutions can improve caregivers' physical QOL. Caregivers' satisfaction with the rehabilitation institutions affecting their physical and mental QOL.

Conclusion:

The formal social support provided by rehabilitation institutions plays a positive role in improving the quality of life of caregivers.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Trastorno Autístico / Trastorno del Espectro Autista Tipo de estudio: Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Child / Female / Humans / Male País/Región como asunto: Asia Idioma: En Revista: Front Public Health Año: 2023 Tipo del documento: Article País de afiliación: China Pais de publicación: Suiza
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Trastorno Autístico / Trastorno del Espectro Autista Tipo de estudio: Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Aspecto: Determinantes_sociais_saude / Patient_preference Límite: Child / Female / Humans / Male País/Región como asunto: Asia Idioma: En Revista: Front Public Health Año: 2023 Tipo del documento: Article País de afiliación: China Pais de publicación: Suiza