Your browser doesn't support javascript.
loading
Measuring What Matters to Children With Medical Complexity and Their Families.
Randolph, Greg; Coleman, Cara; Allshouse, Carolyn; Plant, Benjamin; Kuo, Dennis Z.
Afiliación
  • Randolph G; Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
  • Coleman C; Family Voices, Baltimore, Maryland.
  • Allshouse C; Family Voices of Minnesota, Saint Paul, Minnesota.
  • Plant B; Massachusetts Department of Public Health, Boston, Massachusetts.
  • Kuo DZ; Department of Pediatrics, University of Rochester Medical Center, Rochester, New York.
Pediatrics ; 153(Suppl 1)2024 Jan 01.
Article en En | MEDLINE | ID: mdl-38165239
ABSTRACT
The Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CMC CoIIN) was designed with a foundational commitment to partnership with family leaders to codesign and improve systems of care and supports for CMC and their families - this fundamental commitment was essential to the CMC CoIIN's measurement strategy. In this paper, we examine key learnings from partnering with family leaders from interdisciplinary state teams in the CMC CoIIN to identify and define quantitative quality improvement measures to improve care and support for CMC and their families, including quality of life, well-being, and flourishing; unmet health needs; and support systems such as medical home, patient and family engagement, and shared plans of care. Codesigning the CMC CoIIN measurement strategy with family leaders greatly enhanced our measurement approach and provided numerous unique learning opportunities for the CMC CoIIN's project team and state teams.
Asunto(s)
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Aprendizaje Aspecto: Patient_preference Límite: Child / Humans Idioma: En Revista: Pediatrics Año: 2024 Tipo del documento: Article Pais de publicación: Estados Unidos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Aprendizaje Aspecto: Patient_preference Límite: Child / Humans Idioma: En Revista: Pediatrics Año: 2024 Tipo del documento: Article Pais de publicación: Estados Unidos