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A holistic profile for cancer-related fatigue for women with breast cancer - a qualitative study.
Wijlens, Kim A E; Beenhakker, Lian; Witteveen, Annemieke; Siemerink, Ester J M; Jansen, Liesbeth; Gernaat, Christine; Schellekens, Melanie P J; Siesling, Sabine; Vollenbroek-Hutten, Miriam M R; Bode, Christina.
Afiliación
  • Wijlens KAE; Department of Biomedical Signals and Systems, Technical Medical Centre, University of Twente, Enschede, The Netherlands.
  • Beenhakker L; Department of Biomedical Signals and Systems, Technical Medical Centre, University of Twente, Enschede, The Netherlands.
  • Witteveen A; Department of Biomedical Signals and Systems, Technical Medical Centre, University of Twente, Enschede, The Netherlands.
  • Siemerink EJM; Department of Internal Medicine, Ziekenhuisgroep Twente, Hengelo, The Netherlands.
  • Jansen L; Department of Surgical Oncology, University Medical Center Groningen, Groningen, The Netherlands.
  • Gernaat C; Department Oncology Rehabilitation, Roessingh Rehabilitation Center, Enschede, The Netherlands.
  • Schellekens MPJ; Scientific Research Department, Helen Dowling Institute, Bilthoven, The Netherlands.
  • Siesling S; Department of Medical and Clinical Psychology, Tilburg University, Tilburg, The Netherlands.
  • Vollenbroek-Hutten MMR; Department of Health Technology and Services Research, Technical Medical Centre, University of Twente, Enschede, The Netherlands.
  • Bode C; Department of Research and Development, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands.
Psychol Health ; : 1-25, 2023 Dec 18.
Article en En | MEDLINE | ID: mdl-38108624
ABSTRACT

Objective:

Cancer- related fatigue (CRF) is one of the most reported long-term effects after breast cancer and severely impacts quality of life. To come towards optimal treatment of multidimensional CRF, the first step is to use a holistic approach to develop a holistic patient profile including the patient's experience and impact of CRF on their life. Methods and

measures:

Four semi- structured focus groups with twenty- seven breast cancer patients and fourteen interviews with healthcare professionals (HCPs) were held. Reflexive thematic analysis was used to define (sub)themes for the holistic patient profile. The themes of the interviews and focus groups were compared for validity.

Results:

Breast cancer patients and HCPs described the same five major themes, consisting of experience of CRF, impact and consequences, coping, personality, and CRF treatment. Experience of CRF consists of cognitive, emotional, and physical aspects. Impact and consequences include work, family, partner relation, social contact and hobbies, body, and misunderstanding. Coping consists of twelve (mal)adaptive strategies. Personality and CRF treatment were summarised as themes.

Conclusions:

A first holistic patient profile was introduced for CRF for breast cancer. This profile can be conceptualized into a questionnaire to collect information for personalized treatment recommendations and monitoring of CRF over time.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Psychol Health Asunto de la revista: PSICOLOGIA Año: 2023 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Reino Unido
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Idioma: En Revista: Psychol Health Asunto de la revista: PSICOLOGIA Año: 2023 Tipo del documento: Article País de afiliación: Países Bajos Pais de publicación: Reino Unido