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Rheumatoid Arthritis Care Experiences of Black People Living in Canada: A Qualitative Study to Inform Health Service Improvements.
Thomas, Megan; Barnabe, Cheryl; Kleissen, Tessa; Lacaille, Diane; Hazlewood, Glen; Fifi-Mah, Aurore; Hassen, Nejat; Henry, Richard; Kuluva, Michael; English, Kelly; Koehn, Cheryl; Lane, Therese; Johnson, Nicole.
Afiliación
  • Thomas M; University of Calgary, Calgary, Alberta, Canada, and The University of British Columbia and Arthritis Research Canada, Vancouver, British Columbia, Canada.
  • Barnabe C; University of Calgary, Calgary, Alberta, Canada, and Arthritis Research Canada, Vancouver, British Columbia, Canada.
  • Kleissen T; University of Calgary, Calgary, Alberta, Canada.
  • Lacaille D; Arthritis Research Canada and The University of British Columbia, Vancouver, Brtish Columbia, Canada.
  • Hazlewood G; University of Calgary, Calgary, Alberta, Canada, and Arthritis Research Canada, Vancouver, British Columbia, Canada.
  • Fifi-Mah A; University of Calgary, Calgary, Alberta, Canada.
  • Hassen N; Arthritis Research Canada and The University of British Columbia, Vancouver, Brtish Columbia, Canada.
  • Henry R; Jewish General Hospital and McGill University, Montreal, Quebec, Canada.
  • Kuluva M; Creaky Joints, Vancouver, British Columbia, Canada.
  • English K; Arthritis Research Canada, Vancouver, British Columbia, Canada.
  • Koehn C; Arthritis Consumer Experts, Vancouver, British Columbia, Canada.
  • Lane T; Canadian Arthritis Patient Alliance, Ottawa, Ontario, Canada.
  • Johnson N; University of Calgary, Calgary, Alberta, Canada.
Arthritis Care Res (Hoboken) ; 76(4): 470-485, 2024 Apr.
Article en En | MEDLINE | ID: mdl-38073024
OBJECTIVE: To understand experiences related to rheumatoid arthritis (RA) care and propose service-level strategies to reduce and mitigate inequities for Black people living in Canada. METHODS: Purposive and respondent driven sampling was used to recruit participants for qualitative interviews to explore population factors relevant to RA care and challenges and facilitators for access to health care services, medications, and enacting preferred treatment plans. Thematic analysis was conducted using the Braun and Clarke method with inductive and deductive coding and critical race theory guiding analysis. RESULTS: Six women and two men with RA, and two women health care professionals, expressed how their racial identity contributed to their understanding of RA, preferences for treatment, and outcome goals. Health care access was influenced by financial limitations and racism, by exclusion, and discrimination, and also by cultural norms in seeking health care and awareness about RA within the Black community. Participants experienced health system fragmentation and were not connected to ancillary supports. Treatment decision-making was influenced by the legacy of oppression and medical experimentation on Black people and the predominance of biomedical approaches emphasized by health care providers. Holistic and cultural approaches, provided in safe, trauma-informed care environments, with flexibility in service models, are desired. Partnerships between arthritis care services and Black community organizations are proposed to promote community awareness and knowledge about arthritis and provide support mechanisms for patients within their community. CONCLUSION: Our study highlights unique considerations based on race and ethnicity and provides suggestions for arthritis care to mitigate inequities for Black people living with arthritis.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Reumatoide Límite: Female / Humans / Male Idioma: En Revista: Arthritis Care Res (Hoboken) Asunto de la revista: REUMATOLOGIA Año: 2024 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Estados Unidos
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Reumatoide Límite: Female / Humans / Male Idioma: En Revista: Arthritis Care Res (Hoboken) Asunto de la revista: REUMATOLOGIA Año: 2024 Tipo del documento: Article País de afiliación: Canadá Pais de publicación: Estados Unidos