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A novel system to provide information via online YouTube videos and an evaluation of current online information about hereditary breast cancer.
Iesato, Asumi; Fushimi, Atsushi; Tahara, Rie; Terada, Mitsuo; Iwase, Madoka; Kawamura, Chihiro; Yamashita, Nami.
Afiliación
  • Iesato A; General Incorporated Association BC Tube, 1-5-6 Kudan-minami, Chiyoda-ku, Tokyo, 102-0074, Japan. asumi.iesato@jfcr.or.jp.
  • Fushimi A; NEXT-Ganken Program, Cancer Cell Diversity Project, Japanese Foundation for Cancer Research, 3-8-31, Ariake, Koto-ku, Tokyo, 135-8550, Japan. asumi.iesato@jfcr.or.jp.
  • Tahara R; General Incorporated Association BC Tube, 1-5-6 Kudan-minami, Chiyoda-ku, Tokyo, 102-0074, Japan.
  • Terada M; Department of Surgery, The Jikei University School of Medicine, 3-25-8 Nishi-Shinbashi, Minato-ku, Tokyo, 105-8461, Japan.
  • Iwase M; General Incorporated Association BC Tube, 1-5-6 Kudan-minami, Chiyoda-ku, Tokyo, 102-0074, Japan.
  • Kawamura C; General Incorporated Association BC Tube, 1-5-6 Kudan-minami, Chiyoda-ku, Tokyo, 102-0074, Japan.
  • Yamashita N; Department of Breast Surgery, Nagoya City University Graduate School of Medical Sciences, 1-Kawasumi, Mizuho-cho, Mizuho-ku, Nagoya, Aichi, 467-8602, Japan.
Breast Cancer ; 31(1): 63-74, 2024 Jan.
Article en En | MEDLINE | ID: mdl-37995024
BACKGROUND: The internet, especially YouTube, has become a prominent source of health information. However, the quality and accuracy of medical content on YouTube vary, posing concerns about misinformation. This study focuses on providing reliable information about hereditary breast cancer on YouTube, given its importance for decision-making among patients and families. The study examines the quality and accessibility of such content in Japanese, where limited research has been conducted. METHODS: A nonprofit organization called BC Tube was established in May 2020 to create informative videos about breast cancer. The study analyzed 85 YouTube videos selected using the Japanese keywords "hereditary breast cancer" and "HBOC", categorized into six groups based on the source of upload: BC Tube, hospitals/governments, individual physicians, public-interest organizations/companies, breast cancer survivors, and others. The videos were evaluated based on various factors, including content length, view counts, likes, comments, and the presence of advertisements. The content was evaluated using the PEMAT and DISCERN quality criteria. RESULTS: BC Tube created high-quality videos with high scores on PEMAT understandability, significantly outperforming other sources. Videos from public-interest organizations/companies received the most views and likes, despite their lower quality. Videos from medical institutions and governments were of superior quality but attracted less attention. CONCLUSIONS: Our study emphasizes the importance of promoting accessible, easy-to-understand, and widely recognized medical information online. The popularity of videos does not always correspond to their quality, emphasizing the importance of quality evaluation. BC Tube provides a peer-reviewed platform to disseminate high-quality health information. We need to develop high-quality online health information and encourage the promotion of evidence-based information on YouTube.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Neoplasias de la Mama / Medios de Comunicación Sociales Límite: Female / Humans Idioma: En Revista: Breast Cancer Asunto de la revista: NEOPLASIAS Año: 2024 Tipo del documento: Article País de afiliación: Japón Pais de publicación: Japón

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Neoplasias de la Mama / Medios de Comunicación Sociales Límite: Female / Humans Idioma: En Revista: Breast Cancer Asunto de la revista: NEOPLASIAS Año: 2024 Tipo del documento: Article País de afiliación: Japón Pais de publicación: Japón